Could this be ms and does anyone else have similar symptoms?

New diagnosis and before diagnosis
1

Hi, I’m a 14 year old female and I’ve been dealing with a wide variety of weird symptoms for around 2 years, but some of my symptoms have recently appeared. I’m diagnosed with lumbar degenerative disc disease, vocal cord dysfunction, polycystic ovarian syndrome, asthma, mitral valve prolapse, paraspinal muscular atrophy, and innapropriate sinus tachycardia so im not sure if any of my symptoms could be related to these conditions. I got told by my orthopedist that he thinks I have an autoimmune condition so I have an appointment with a rheumatologist in 6 months, I have family history of lupus so I was pretty sure I had the neuropsychiatric version of it but now I’m thinking it could be ms… my symptom list is:

Constant muscle jerks and twitches

Numbness and tingling in ring and pinky finger on both hands, tingling and numbness in toes

Bladder incontinence

Joint and muscle pain

Pinpricks/itching/tingling feeling near ribs and spine

Memory problems

Severe chest pain

Sensitive to cold

Vertigo, dizziness and feeling like I’m floating when lying down

Very clumsy, bumping into things and dropping stuff.

Is there anyone who experiences anything similar and could it potentially be MS? I’m going to my neurologist in 3 days to see what she thinks. Any advice would be appreciated and i hope everyone is doing well!!:pray:

I also have a positive rombergs test.

2

I’m so sorry, you are very young. I have most of your symptoms and I’m undiagnosed. My MRI 2 years ago didn’t show MS and I’ve just had another lumbar MRI. I do have lesions on cellebrum though. I have clonus and positive Romberg. First thing 3 years ago was blurred vision. I also had EMG nerve study which was negative last November. It’s a really tough road to go down. Mostly I feel disbelieved. I go to my neurologist with a precise list of symptoms and dates which doesn’t get looked at. It’s a shame as not everyone is the same.
I don’t know why I have lesions but maybe linked to the gluten sensitivity for which I have genes. I think whatever I have is spasmodic, it feels like my bones are being gnawed and my muscles getting weaker and the ache is awful. Keep us posted please

3

You sound like you have an awful lot going on I hope you get some answers, many people with MS are sensitive to heat, their symptoms worsen as their core body temperature increases I hope that helps, wishing you all the best.

4

You’ve never been tested for gluten sensitivity? That’s one of the first things my GP wanted to check.