Hi everyone. new here, i’m female in my late 20’s. been having dizziness for years, and strange sensations when walking, some tingling in toes and fingers.
my dr is concerned about MS, have a referral to a neurologist. report to the neurologist states that I have hyper flexia of all limbs, positive romberg sign, “up” plantar reflex (is this the babinski?) with mild clonus.
just wondering if anyone here had similar symptoms before diagnosis, and how important are the findings in the reflex department? I also have a positive ANA
many thanks for any advice or experiences similar.
Hi Katrina,
Im sorry I don’t know anything about the medical terms but I’m waiting on a neurology appointment too.
Never been so scared. I have the tingling and some numbness. They didn’t say to me what they thought it was. Just that I must see a neurologist.
Hi katina (and juststacey)
The problem is that there are so many things that can cause odd neurological symptoms. At least you have both been referred to a neurologist.
I understand that it’s hell knowing there’s something not right, and suspecting MS, but the only thing you can do really is wait for your neurology appointment. The neurologist should take a medical history, do a physical examination, and order tests as appropriate (MRI, possible lumbar puncture, possible VEP). Only then will they be able to diagnose MS, or indeed anything else.
If you haven’t received an appointment within about 3 to 4 weeks of the GP referral, check with your surgery that the referral was sent and to whom it was sent, then try phoning your hospital appointments office to see where you are with regard to an appointment.
Sorry there’s nothing much more positive to say at this point. Hoping all goes well.
Sue
thanks for the replies. i just found out my neuro app isn’t for 3.5 months. I’m going to go bananas. any tips for waiting?
Do you know the name of the neurologist you’ve been referred to? If so, try phoning their secretary, explain how worried you are and see if they have any way of getting you in sooner. If this doesn’t work, then try the same thing with the hospital appointments office. If this fails, see your GP again, explain how worried you are, and ask them to write again to the neurologist asking for you to be seen as an urgent case. Each time, be nice and friendly, saying, “this is ridiculous having to wait all this time”, probably won’t help matters, (even if you feel it).
Failing all of the above, some people start out by seeing a neurologist privately, they end up being diagnosed with MS (or whatever else it could be), then transfer back to the NHS for ongoing neurology appointments and drugs etc. They often end up seeing the very same neurologist they saw privately. If you can afford this, it might be worth it to get the long wait cut right down.
Sue
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I do think that if the wait’s unbearable, private for the 1st appointment is the best option if it can be afforded
Hi the private waiting list is 3-6 months on average. I am going private. the public waiting time here I’m told is 1year+
I’ll have to stick it out. gp said to return to him earlier if I notice anything new. thanks for all the support guys.
I’ll be back in december to let you know the findings, if anything.
Hi Katrina
That seems a long wait! What area of the country are you?
Julia x