MS Symptoms for Years

Everyday living
1

Hi Everyone

Before i waffle on i do apologise but im hoping i could get some advice or see if anyone else has suffered from any similar symptoms.Im a 32 yr old female who has had MS symptoms since i was 24 but i havent actually been diagnosed but i am under investigation still according to my medical records which i have recently had access to. It started where i had numbness/twitching and vibrations in my left foot which over the years has spread to my arms,hands,other feet and face ect.I was sent to a Neurologist and i have had 2 clear mri brain scans using dye contrast and was told i didnt have MS and was then referred to an Rhuematologist who diagnosed me with Fibromyalgia.

I have struggled with terrible symptoms over the past 8 years such as Numbness,twitching,aches and joint pain,balance problems,sickness and many more and i accepted the Fibromyalgia diagnosis until recently.I started 5 weeks ago with a twitch in my right eye lid and it just wont go away along with sharp head pains so i went back to the drs and they are referring me back to the Neurologist after speaking to him as they said it is more than likely coming from my brain and a result of MS. I am so confused as the dr checked my reflexes and she said that they were normal and equal on each side and i have recently had an eye test due to the twitching and they said i didnt Optic Neuris and i had perfect eyesight. Surely if i had MS for over 8 years something would show ?

Just wondered if anyone else had similar symptoms or twitching eyelid caused by MS as i feel like i am on an emotional rollercoaster and its giving me terrible depression not knowing if its MS that i have.Any advice or help would be fantastic please.

Thankyou xx

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Did you have an MRI of your spine too? Often a lumbar puncture can help lead to a definitive diagnosis. These are things to ask your neuroligist about. Also, I would query if it’s possible lesions from an earlier relapse could have completely cleared on an MRI if you have RRMS. Take a list of questions to your neuro apt. Ask if you can record the apt maybe? Hope this helps. xx

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As the previous poster says, lumbar punctures and MRIs of the spine, along with other tests called evoked potentials can also help diagnose MS. Obviously I can’t say what you have, but twitching eyelids (with no optic neuritis) is one of my symptoms and the only one I have had for years despite only being diagnosed in January. On the other hand I know loads of people without MS who also suffer from this. I hope you get to the bottom of this soon, as it is horrible worrying.