I have posted once before on the road to diagnosis and that was not plain sailing.
3 episodes of optic nuritus in left eye and 1 in right . Inflammation on spine leading to completely numb legs. Seems quite simple but all the tests were very confusing. Have had serveral MRI of head (not showing leisons) but a second opinion showed 2 faint ones. 2 devics blood tests both negative. MRI of spine showing inflammation now very patchy (leisons?) 2 lumbers one was positive csf and serum so was done again by the 2nd consultant who was asked to look at my case my the 1st. This then showed negative on both things ( i have read here this can not happen) and lots of blood tests for different things. So the 2nd opinion is its more inclined to be MS (RRMS) so now seeing the MS nurse this coming friday to chat about RMD's.
Well thats not really why I came on its because I have a very painful back (sometimes like someone is stabbiing me takes my breath away) well been to GP and asked could it be MS related as this is how the back started before but higher up. He says no?? more likely to be muscle related and referred me for physio and sent me on with painkillers amd muscle relaxents. Has anyone experienced lower back pain like this ?? please help !!
I have spoken to consultants sec and she said she will pass on the concern and mention to the ms nurse friday.
Iam worried this is a relapse as i was doing quite well ......
thanks for reading replies most welcome