Hi, I am new to here. My husband was diagnosed with RRMS in 2003. He has since been diagnosed with secondary progressive in November 2015. He has steadily got worse since this time. He is now suffering with tremors and very decreased mobility. He is 47 and looks like he will have to take ill health retirement imminently. I am his sole carer. I work 11 hours and claim Carers allowance. We do have family but they seem to ignore the fact that he is getting worse and are just getting on with their lives, going on holiday etc. Every day is a struggle getting him up showered and dressed and then in reverse in the evening. He does not seem keen on having carers and even if he did there is the funding. With him still classed as working we cannot get any financial help and when looking into it, costs to have help a couple of hours a day would be a few hundred pounds per week which we cannot afford.
just wondering if anyone can offer any help/advice. I have been in touch with a carers organisation near to where we live and they just advise to try to remain positive but this is becoming very difficult.