hi, its happened 3 times so far where my feet feel like ice blocks and it feels like theres thousands of burning pins bein shoved thru my feet, it goes on for about 10 mins or so then it wears off. i spoke to mum about it n shes told me in no uncertain terms im not to see the dr or anyone else about it as they will say im trying to fake nerve damage, as she knows everythin about nerve damage in her feet as shes got it…why the hell would i want that on top of everythin else? all i did was talk to her bout it, i never said i was goin to the drs or anythin n she jumps down my throat telling me wat im not to do, it seems i cant talk to her bout anythin to do with ms as shes now a “expert” in ms after readin 2 sites, and jumps down my throat with her expert opinions and tells me wat im not allowed to do and still says that she doesnt know why im doin stuff, like using a crutch coz my legs play up…its gone past the bit of she just wants to ignore it to the bit of i know better than you therefore you will do as i say, the 2nd neuro appt i had she said after how was i that id been told i had ms n i said i already knew n im ok, all she said was that it was properly confirmed coz she heard it for herself (which made me feel like she thought i was lying about it), now i have no one to talk to about ms in the family
I’ve recently started to have the ‘burning’ feet. Same as you it doesn’t last long but it’s generally when I go to bed. I spoke to my m.s nurse about it to see if its linked to m.s and she said that it is common but you can take medication for it. If your worried or if its starts to become a problem contact your m.s nurse for advice. Some mums always think they know best!. Why don’t you contact your local m.s society and see where they meet up. It will give you the opportunity to chat to people with the same worries. Hope the above helps
i dont have a ms nurse, and theres no ms groups by me at all, there was one but it shut down, the nearest to me kind of is dudley which is miles away n i cant get there on my own
I also get the numbness then burning then shooting pains , usually at night in bed . I still haven’t worked out the best thing to do . But it does pass , it’s does get u down though. Hope.