Not currently diagnosed with anything.
I have been suffering for years with intense tingling and whooshing sensations in my legs, feet and lips after showers, usually worse the warmer or hotter it is, but happens even in slightly warm water. Happens after baths too. I don’t notice it during the shower. Will also happen if I go for a 20+ minute walk. I went to a neurologist and got a spine and brain MRI, it came back clear, I didn’t have contrast though but supposedly I am told this doesn’t matter as they would have added it if they saw anything suspect. I have had my scans checked by 3 different neurologist radiologists and they confirm no sign of MS and my motor functions seem fine. I have suffered with this for 8 years now if not longer. I will also sometimes get muscle spasms in my feet post shower, but I guess that might be because I bend my feet to shower under them. I am also 24 stone so very heavy. I suffer from back and neck problems too.
The neurologist can’t explain what is causing this, he just shrugged when the MRI came back clear. I have not had any nerve conduct tests. I have tried not drying with a towel just in case it is that, but it doesn’t make any difference whether I dry with towel or drip dry. It is NOT a itching, it is a horrible electrical style tingling and whooshing, it can get so bad that I will be almost crying in bed in discomfort after showers or exercise or mowing of the lawn. What I usually find is I wake up after sleeping without any tingling at all, until I move, if I move in bed then it comes back. It can last a week or so, or just a day, it differs.
What on earth could this be ? I have always thought it is MS but with a clear brain and full spine MRI I guess that probably means I am 90% unlikely to have it ? Not sure what to do or who to see. Everything I read online is either MS or itching, but this is definitely not an itch, I feel like my legs are attached to electrodes and it is within the legs not on skin.
Oddly the middle of my body is not effected, just the legs, feet, and lips/tongue (and sometimes scrotum). Also any idea why I would be tingle free when I wake up after a full nights sleep, until I move again ? Really makes no sense to me and no doctor seems to know. Very confused on what to do. Blood tests don’t show any issues and no diabetes.
Thanks everyone for reading !!