I am 34 years old, very obese at 26 stone, and I have had problems since I was 19. I have had 2 MRIs, one 10 years ago and another 3 years ago, of both spine and head, no contrast. None have shown any lesions.
I am very worried though as something crazy is going on with my legs, and I am unsure if it is just weight related or neurological in some way, I have always been concerned over having MS, but I know it mimics a lot of other neurological problems, even anxiety. I wondered if anyone can answer my below questions ? I will understand if everyone is too busy, I know it must be annoying having a undiagnosed person asking questions.
When you have MS, can it be better after waking or does it not relate to time of day ? When my legs are going crazy I find when I wake up (after sleeping over 5 hours) they are almost perfect (except the new problem mentioned below at number 3), but as soon as I move or get out of bed the sensation is really strong again. I was wondering if MS, because of being lesions in the brain and spine, is unrelated to posture and time of day, or if it is relevant ?
When I have a shower my legs go crazy afterwards, I feel blood shooting around in them, I get prickly and pinchy feelings all over them, they tingle, and I get muscle cramps in my feet when I sit or lie down and my legs feel like I have run a 20 mile marathon. This terrified me as I instantly thought MS. Can there be anything else that can cause this ? I now use luke warm water and fragrence free soap, but it can still happen. It happens when I have a bath too. I now flannel wash as much as possible as the after effect feeling from the shower can last days and weeks, although when I wake up it is often very good, until I move my body. I get a very similar problem after walking for 15 minutes or more, which is making my weight loss atempts very difficult as I find it hard to cope with the after effects of a walk, I always call it a fireworks factor having been set off in my legs, they feel like they are going crazy.
On Friday I started having a vibration feeling in my left foot, underneath it although it is hard to pinpoint exactly, which I still have now and am booking a doctors appointment for. I woke up with it. It is a cross between a mobile phone style vibration and a cat purring, right now, for instance, it is happening every 2 to 3 seconds, like clock work, so for 1 second it purrs, then stops, 2 to 3 seconds later starts again, and so on. This happens all the time, even when I wake up and don’t move (unlike the above). I have a lot of dark spider veins on my left foot, which I don’t have on my right foot, but it isn’t swollen and I can’t see anything twitch or move when the sensation happens, and no matter how much I grab and manipulate my foot the sensation is the same.
Number 3 above is brand new, and I have not been to the doctors about it yet, but am booking an appointment for it. For the other one I did see a nurologist and he stuck pins in my legs but just said it is something that just happens and he can’t explain why, which was really annoying to hear, but I forced a MRI. This came back clear other than thoracic scoliosis. But I did not have the tingling problems when the scan happened, in hindsight I should of had a shower the same day as the scan as my legs felt okay during it.
I can usually avoid a walk or shower (as I say, I can wash via flannel and nursing wipes) so the problems from that are not my biggest worry, it is number 3 that is as I can’t stop it, 24/7 I am getting this vibration/purring feeling, which isn’t a nice feeling. As I am obese I thought about compression when sitting, but it happens when I lie down and stand too. An even worse thought is a brain tumour, but I know I can get carried away and that won’t do me any favours, I am praying that it is due to my weight in some way.
Does anyone have any ideas ? Does it sound classic MS ?
Thanks everyone !!