I’m new to the MS Society, and decided to post on here because you all seem like lovely supportive folk!
I am a 21 year old male, not currently diagnosed with MS. I have only had the usual bloods/blood pressure tests etc. done along with an MRI of the brain/ears towards the end of last year.
It all started early last year when I just didn’t feel ‘right’, it’s difficult to explain. There was a certain ‘offness’ about me, but I couldn’t quite point out what it was. I started developing a general apathy towards things, mainly those of a physical nature such as exercising or going out (I used to lift weights on a regular basis). I didn’t feel I had the right ‘energy’ to do things that I would normally do. I also had random episodes where my mind felt extremely hyperactive and felt like I had to ‘escape’ from my surroundings for a few minutes; I almost CRAVE isolation these days!? I also had other minor problems that I didn’t really think about such as frequent urination, occasional mild tingling in my heels/toes, short bursts of hearing ringing in one ear (5 seconds or less) and fatigue.
I attributed these symptoms to anxiety as I was revising for difficult exams at that time and really wanted to try my best, so I presumed the stress had a part to play.
I gradually dismissed this idea of it being a result of anxiety as I could notice worse and more identifiable physical symptoms cropping up as I would exercise or take a shower. I felt like I couldn’t feel my arms and legs during exercise and would feel extremely lightheaded where I thought I would pass out (still the case today), and I felt wobbly and strange when taking a shower.
It became a real worry during last summer where I noticed some very strange and very scary symptoms when standing up. The best way I can describe it is the sensation of being in an elevator, that sudden jolt where the ground feels like it moves up and down momentarily. It is horrifying because it hits me at random times, especially when standing still (which is funny, as walking doesn’t seem as bad?). It is definitely more noticeable in the shower and has led me to use cool water instead. It doesn’t happen all the time, it doesn’t happen every day, but the symptoms have not subsided – it is easily the worst of my symptoms.
I also noticed some balance problems that could sometimes accompany the elevator feeling, which would require me to stand in a funny position when standing still, with one leg behind the other, or having to clench my toes/sides of my feet into the ground to maintain balance. I also feel like I have to ‘lean’ into things or rest my arm on something otherwise I would get a strange sensation in my legs like someone was gently tugging the ground under me, similar to the elevator sensation, leading me to want to sit down whenever possible. I can also have episodes of (sensory ataxia?) where I feel I am walking on a bumpy surface when the floor is quite evidently flat, or I am walking in the air or conversely where my legs would feel a bit heavier. They do not last long, anywhere from a day to three days is the most common. This is the most prominent and annoying set of symptoms I have by far!
My optometrist recently found out I had a corneal ulcer when I complained at having short episodes where I would wake up with a very painful eye that would be very watery and bloodshot red, that would go away in a matter of hours/a couple of days. I may have had reoccurring corneal ulcers three or four times if this is the case! Alongside this eye-related problem, there have been several times where it would hurt slightly to look in the corner of my vision, like my eye would be strained, and occasions where my eye would be red without any pain (I am almost certain this is optic neuritis).
Other mild symptoms that diminish relatively quickly is the sensation of smelling burning/cigarette smoke, a sense of ‘vibrating’ (more commonly when lying down), temple pain and a tight ‘rubber-band’ feeling around the head and sinus.
I am extremely sorry about this long essay, but I feel like you guys are the most appropriate to talk to about my worries, I really do feel like I’m lost in limboland. I feel like I’m alone in this struggle and all I want is a definitive diagnosis of SOMETHING just to prove I am not going crazy, these symptoms are really affecting my quality of life and there is no way this can be anxiety, even my GP agrees with me. I am seeing a neurologist very soon for the first time so I was wondering if there was any advice on how I should approach him/her, and if you guys have had any similar symptoms, especially with the balance/elevator problems and the feeling of feeling ‘off’ and ‘craving isolation’ as I cannot find much info about this :S
Thank you so much, this site has already been very helpful!