Spent a bit of time creating representations of the kinds of images I am seeing and posted on Youtube. Link below.
It is a slide show - slides change every 5 seconds or so.
I know a bit about vision and the brain, but I do not know enough to be able to tell you why this is happening. I would guess that it is something in the brain / visual pathways rather than in the eye that it causing this though. I would also guess that it is important for you to see a neuro-ophthalmologist and to have a brain MRI.
I appreciate that you say you don’t get migraine, but it’s possible to have migraine without headache. Has this been properly explored? (Although migraine wouldn’t explain the patchy near vision.)
If for some reason you’re not getting a referral to a neuro-ophthalmologist, or they haven’t been able to help, then you always could try sending the clip to a vision scientist at a University near you. Look for someone who studies abnormal vision on the staff pages of the website. You might not get a response, but nothing ventured, nothing gained!
Karen x
Thanks Karen, very helpful. Funnily enough I emailed somebody who had their email in their research paper and I will follow up on your suggestion too. Just wondering what else happens symptom wise with a migraine if you dont actually have a headache? Nobody has explored the migraine possibility beyond an eye specialist I am seeing for glaucoma mentioning that they can be associated with migraine. I am seeing a neurologist in a few weeks. Will ask my GP’s advice and ask him to look at the images - it’ll make things a lot easier because I dont think people have necessarily understood how striking they are and of course everybody experiences vaguely circular/blobby pressure phosphenes and they may think this is what I mean.
Bob x