I’ve been away for a while. Just really been trying to plod on and not think too much about my health. Things have actually been relatively ok aside from jan when I had the whole fatigue issues (which were very scary as it affected work) and april when I had motion sickness.
Some of the old numbness and things are back at the moment but I’m hoping it’s just the humidity.
Still waiting for an appointment. Dr Muraro was meant to see me early April but he went on sabbatical. I was meant to be seen within a month of this date with another MS specialist but appointment not transpired. After months of waiting I was then told two extra clinics were being set up to accommodate the overspill Dr Muraro leaving has caused. Now over six weeks since this conversation I’m told by the doctors secreatry that he’d heard something like this was meant to happen but of course no clinics yet.
I’m completely appalled that despite the fact they knew Dr Muraro was meant to leave in Feb nothing was put in place for all his patients. It’s almost 4 months since I was meant to be seen for my six month review. I work for the NHS so I know this is completely wrong. Got very frustrated now - thankfully I have been fairly okay but I haven’t been symptoms free and have had new things happen since last oct which need to be documented as I don’t have a firm diagnosis only ?MS.
Anyway raised it with PALS and it’s going through the complaints procedure now and will need investigating. I have demanded that I be contacted for an appointment by the end of this week so lets see what happens.
It really just isn’t on. Is anyone else in a similar situation with Charring Cross?