and I’m nervous as hell! I’m not at all sure I want this. I don’t know how it’s going to work, or even if it’s going to work! One carer to help me in and out of the shower and dressing in the morning, and again in the evening to help me get ready for bed. But not put me to bed. I don’t want to be in bed by 8pm!
After my earlier post having a moan about the lack of support I rang the MS nurse, who told me to ring social services myself, she was so out of touch she gave me the wrong tel no!
I got through after several attempts and a telephone assessment was carried out. Then I had a call from a social worker giving me a bit more information, but I didn’t properly take it in. I think he said I’d be provided with the details, but I’m not absolutely sure. I do remember him saying it would be means tested and I’d probably have to pay. This begs the question if I’m paying would I be better sourcing it myself? Anyway, I got another call today saying there is an agency able to start on Monday. I’m guessing I won’t get the same person every day.
I thought someone would’ve visited to assess me and my home. I’ve not yet been means tested either.
I also rang the community OT who visited last month to see if I could maybe get a wheel in shower seat or maybe an aid to standing. Apparently the answer is no. I’ve been discharged by them, so I would need a new referral, and as what I’m asking for is not for “rehab” they won’t supply it. I’ve no idea why the OT left me her number when she must have known she was discharging me, and could offer me nothing were I to ring. Looks like I’ll have to buy them myself.
I’m beginning to wish I’d not embarked upon this, but my husband, who is older than me and with health problems of his own can’t go on doing it all.
Got someone coming next week to demonstrate and advise on adjustable bed and riser recliner chairs.
This disability malarkey is expensive!