I am a carer since 2003 for my husband who has PPMS.
I work fulltime as well as carer for my husband and I was advised to have a carers assessment.
All I can say is what use was it. There is nothing they can help me with and the Social worker suggested to me as I knew nothing of it that I could have a carers grant for a household appliance like TV Washing machine etc. I said that would be useful and he applied to the powers that be and it was declined. They said because I worked I could get these things myself.
Why mention it to me I knew nothing about it and he threw me a lifeline then took it away. I feel like I am really alone to care for my husband. The only person that I felt helped us was the OT but I cannot see what input the social worker really has for me.
He said leave it until next year and be assessed again. I said don’t bother I will never ask for anything for myself again and ONLY for my husband.
This year has been very traumatic with hubby in hospital twice this year with UTI’s and my work hours now reduced to help him more, I feel so let down.