Just wondering if it is usual or if a specialists mind if patients have someone go in with them to a consultation, especialy if they are in the middle of a bad relapse and dont know if they are coming or going. Talking about a 30 year old bloke here who thinks he has to face every thing on his own. Just thinking of another pair of ears really, prompting him if he forgets anything, there is quite a list. It’s at Walton and it’s is usualy so busy.
He saw a Polish neuro who was not an MS specialist a couple of weeks into the relaps, and the guy sent a letter to his GP saying it was his second relapse (which it was not) and ‘he could walk previously’ (which he couldn’t, and! had said so on his ESA form and to ATOS) but now could only walk 50 meter’s which he definately can’t. The letter itself just didnt make any sence and now with ATOS doing PIP as well as ESA, things like that really need to be acurate.
Since then he has just got worse and worse and now trembles and shakes all over, is really hot all the time and really thirsty. Plus he can hardly stand up at all now never mind walk 50 meters. He had a urine test to make sure he didn’t have an infection.
Are these symptoms usual in a relaps, and is there any help with them especialy the tremmor ?
Sorry to go on but I’m worried sick about him and don’t want to ‘waste’ this rare appointment.