I was wonderng if anyone could hep me out.
I have been diagnosed wt MS (r/) for 10yrs or so. I am going into relapse think. It started week a go and has been getting steadily worse.
I am under a neurologst at th walton cenre. In the past if i needed to see/speak to the ms nurse i would just phone the ms nurse office and leave a message on the answer phone. However this time when i phoned the contact number i got through to the MS advice line. The lady on the phone informed me that she could not offer any help or medical advice and could only schedule me in for a phone consultation with an ms nurse but this would not be untill next thursday (03/04) and if things turn into anything serious i am to go to my gp.
I wasnt sure about what was going on and felt confused so i have been to see my GP to clear things up. She contacted Walton and was told that i indeed have to wait for my phone call next week and only then can an ms nurse book me into a relapse clinic.
Does anyone know anythng about this new system? I feel like i have no one i can contact relating to MS. Granted it’s only a week, but a week before being able to discuss symptoms seems a long time. Yes i appreciate that there are only a coupe of nurse specialists and their time is very precious, but is this really good enough?
Any advice greatly appreciated.