Hi to one and all. - I was only diagnosed about 3-4 years ago, but the Nuero thinks I have had it undetected for many years, lived abroad and was suffering loss a balance, resulting in several falls and broken bones. Came back to the UK in 2010, weighing just over 5 stone, almost the walking dead.
The good old NHS have surpassed my expectations. My wonderful G.P. sent me to St.Richards in Chichester, quite a long way, but firstly Richard Dewhurst, head of General Medicine and then the Neuro team and Urology team have been superb, as has my wonderful MS Nurse, Lisa.
Having moved last year I was forced to change my G.P. They provide prescriptions and regular B12 injections, also 6 monthly Stroke/TIA review - which are a a result of an almost fatal car accident in the early 90’s when I suffered an Ictus in my brain & a stroke. To me a waste of their precious resources, Heart, Lungs, blood pressure etc. always normal and have been for almost 20 years. BUT and it is a big one, they will not deal with new MS problems - say I have to wait for my next Neuro apt. (June 22nd) Also they only offer telephone consultations for non emergencies, no good to me, am 80% deaf, and can ni longer put my hearing aids in as my fingers don’t work.
I have suffered from regular, very painful toe & fingers spasms for a couple of years & twice after major stress had them in my chest (10 rounds with Cassias Clay type) I now take 6-8 baclofen a day as my hands and feet are almost constantly numb, my fingers no longer close together, the spasms last for hours now, rather than minutes.
Is this normal for those who suffer these symptoms?
I know that I will find out on June 22nd. but would like to hear from anyone who also suffers from this problem or could it be that I have something else wrong with me that is not MS related.
Thanks to all of you for sensible advice & support.