Hi All.
Hope you had a good Christmas. I’ve not posted for a few yrs, but would like to know if any of you suffer from Burning Mouth syndrome during a flare up?
I’ve been taking Fingolimod as a DMT for several yrs now, & at times my whole mouth & surrounding area, feels like it’s on fire.
My temporary solutions have been crunching ice, trying to reduce smoking (VERY difficult in times of stress) & rest . . .
Has anyone got any tips please . . .
I’m kinda reluctant to take further meds, as feel I’m rattling with them already ! lol.
Many Thanks in Advance.
Hiya and sorry to hear you’re going through this, it’s horrible and can relate as I’ve been going through this off and on for the past year. I use a special toothpaste and mouthwash with no alcohol in it also refrain from foods that will irritate my mouth, chew gum, drink water and suck salivix pastilles as I also lack in saliva. If you speak with your doctor as there’s lots of products to ease the symptoms. I gave up smoking 18 months ago, unfortunately this will aggravate your burning mouth. Mines burns, but also can only feel a small percentage of my teeth. Is it a side effect from your DMT? Or is it down to a lesion? So many medications can cause dry mouth which in turn can make it feel like it’s burning. One of my lesions has affected the Trigeminal nerve. Hope this help you. X
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Taking b12 solved my problem with TN and no harm in trying.
“It is important to keep the body healthy to help manage the pain-pathways. Vitamin B Complex, especially vitamin B12, has some evidence in helping regulate nerve function and may be beneficial.” https://www.tna.org.uk/tips-for-dealing-with-tn/
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B12 doesn’t seem to work for me, 
and I have used magnesium, vitamin D, I have been having horrible foot pain for 3 weeks, I have used dinomint, pain relief gels, any idea, it’s depressing me.
LG
I’ve tried taking vitamins, gabapentin, tramadol, pregablin, duloxetine and the only thing that’s helped Trigeminal neuralgia is carbamazepine. It’s affected 75% of my head and been that way since diagnosis. Also affecting my blink reflex, so I’m having to use eye drops several times daily.
Hiya, have you tried support stocking, compression stocking as they may give you some relief. Personally when it’s really cold I wear two pairs of socks as I can’t feel my toes on either foot and when they are cold they are really painful. Do you take any medication for nerve pain? Hope you soon get some relief as it can really get you down the constant pain.
Animal
I really don’t want to use that type of pain relief, I’d rather go and use herbal stuff possibly from Holland and Barrett, not sure if there is any lol. My MS nurse said they have something for pain, but I work so just have to carry on, also thanks for your advice about wearing 2 pairs of socks, I am definitely going to give that a go, also I have support bandages ect, but only gets ya so far. Hope your keeping well yourself. And tanks for your good advice, it’s always appreciated what ever advice I can get 
I’ve found it definitely helps me, hope it gives you some relief as found when I’m cold they’re more painful. We all deal with things/ pain differently, hope you manage to find a herbal alternative to ease your symptoms. Ive found since starting a DMT in October, this is now helping with issues I’ve had with my bowels. Hopefully once you start treatment it will have a positive affect on some of your symptoms too.
Difficult to say anything useful, without knowing the cause of pain and it might not relate to MS. Take a look at the NHS site and see if there is a likely culprit.
Foot pain - NHS
Hi
Ah it’s most likely nerve pain, but lasting 3 weeks 
i have been on the NHS site and it could be another, neuropathy mostly. Thank you for your advice. I hope you are keeping well.
LG
Gosh … I’m sorry. I have problems with my feet too … sometimes numb & throbbing, especially after a day at work, being on my feet all day.