Hi everyone. Hope your all as well as can be expected. I have had some breathing issues since the start of the year and they now seem to be getting worse.
I can’t seem to take in a full breath and really have to concentrate on my breathing. I have been to GP a few times and they don’t see that there is anything wrong with lungs or heart. The last Dr. I saw said perhaps it’s asthma so gave me an inhaler. This doesn’t seem to help so going back again next week.
Can anybody relate to this? Perhaps it’s an MS issue? I don’t feel as if I am having the hug when this happens but it’s scaring me now and really fed up.
Sarah x
Hi I have had some breathing problems along with other symptoms to. Initially I saw my GP who took some blood tests which came back clear. They then did a puff tests which was low, so they gave me an inhaler to try but also referred me to cardiology. I spoke to my ms nurse who thought it could be side effects to meds but she then spoke to my neurologist who said definitely not and she got my cardiology appointment brought forward. I have had a heart scan which seems clear but 24 heart monitor has thrown up a problem for which I am now having further tests before a definite diagnosis. I was told it was not my MS. If it persists keep going back to your GP until you are happy with the answers. It is important to remember that just because you have MS you can still have other health issues, unfortunately! Good luck Mish x
do you feel stressed,i ask because if i have bad stress it causes me to feel breathless quite a lot.
J x
I have had an ekg done Mish, and it came back normal. I just feel like the dr. cannot be bothered so just say anything to get rid of me. I’m not convinced it’s the ms but just worried that if they keep fobbing me off something awful will happen. So Because of this I am feeling a little stressed Mrs J but I had the breathing issues before I was stressed. Although I guess the stressing could be making it worse.
Just fed up with feeling rubbish all the time and not getting any answers. x
Ok this may not be helpful at all because I am not Dxed. But over the last few years I have two bouts (which have lasted about 2 weeks each) where I have been really short of breath. Each time it has been like I have not been able to take a full breath in almost like there is something stopping me, perhaps my diaphragm not working well, and so it means I run out of breath when talking etc. doctors were a bit mystified - the first time it happened they got me to blow in the asthma tube and it showed the lung capacity of an old lady (I was about 34) but when they booked me in for lung function test it had gone so I tested perfectly. The next time it happened I went to the docs and they tested me for anaemia which came back neg but by then it had resolved again so I forgot about it! Since MS has been put forward as a possibility I have wondered whether it has been a painless version of the MS hug? Leah 
Leah No, I don’t know what it is but it is not a painless version of the MS hug. The MS hug is tightening in your rib cage, where muscle contract, I think. It does come in various strengths. It can cause you to feel breathless like you would if someone was pulling a corset as tight as they can around your rib cage. When I first had that I could barely stand the pain was so intense and called NHS direct at night, as at time I had not been diagnosed and very worried. That was two years ago and I still have that problem. It comes and goes but not at quite the same intensity of my first episode, thankfully. Sarah The ECG is such a quick snap shot of what is going on (I had mine done at GP surgery and again at hospital) mine didn’t show anything either. It could be as Mrs J said, stress can sneak up and cause breathing problems when we are not expecting it. However even if it was that simple you still need to be diagnosed and discuss ways of dealing with it. I know exactly what you mean about it starting before the stress of symptoms started though. Have you got an MS nurse or neurologist you can approach? I was told it was not my MS by my ms nurse but that gave me the courage of being able to go back and tell my GP that. Do you have any more unusual symptoms? If so make a note of them so you can tell GP if it continues. Mine was put down to my thyroid to start with (which is under active) so I put up with it coming and going over a year before a further test showed thyroid was not the cause. Don’t worry though. Many things can cause breathless problems most of them being treatable and not awful just another thing to add to your list. If it carries on you must go back to GP and tell the it is continuing to be a problem. Hope that helps rather than worries you further. Mish x