Hi Boudica,
Mmmm, its a big decision isn’t it !
I think maybe further down road when its absolutely necessary, at the moment I’m finding it hard but I can cope (just).
The spasticity consultant who mentioned the pump said the main risk with these pumps is infection, the body can sometimes see it as something foriegn .
The last thing we need would be infection in or around the spinal code.
Hi, I use cannabis at night for pain with a vaporizer, I wouldnt be able to cope without it, its a shame its not legal yet
glad it helps you simone2, I don’t fancy doing that, but each to their own.
Hi so my reply is probably a bit late now I think a lot of people don’t understand CBD properly not even the medical profession due to the prohibition of any conversation regarding the cannabis plant To say it doesn’t work is like saying I took a paracetamol tablet once and it was useless You have to have the right kind of medication for the pain that you are suffering This plant is incredibly diverse and I honestly believe that if you have the right dosage and strength of CBD oil for the particular pain you’re trying to treat it can be every bit as effective as prescription medication Also if you are diagnosed with Multiple sclerosis there are specialist clinics with neurologists in London who can now legally prescribe combinations of both CBD and THC (although private medicine) However there is charitable funding available I have primary progressive multiple sclerosis and Antiphospholipid syndrome my prognosis was extremely poor (18yrs now) I no longer take prescription medication
I guess it made you too relaxed…baclofen did the same for my muscles and I fell more.
Boudsx
Hi mully, thanks for your reply, I have recently started taking CBD from a company in Edinburgh, I’ve been taking it for just 6 days, it’s a 1000mg, 10% and so far nothing, I will continue with it for a while longer. I’m taking it that you yourself take it ? if that’s right, where do you get yours and what dosage ?
Jean x
Hi guys, I’ve posted a few times previously re my experiences with CBD oil and have been taking roughly 4 drops every night for 30 months to ease lower left leg cramps and restless leg problems that occur early in the morning while in bed. I’ve learned that there’s a difference between cannabis CBD oil and hemp CBD oil, but some experts prefer hemp oil and think it has more properties involved. I’ve discovered that most of my previous CBD oil purchases have been hemp oil products with no THC and I can’t tell the difference except that 15% oil is better for me. I’ve just finished a 10% bottle of cannabis CBD oil and think possibly the hemp oil is more effective at 15%, if certified.
I hope my input helps.
Hi Jean I believe low and slow is the way to go Do you have a CBD shop or dispensary near you If you can get to Guernsey The CBD brothers now have a medical cannabis dispensary shop selling CBD and THC also an onsite doctor There is a facebook group cannabis users UK It’s for people that are sick and for CBD users they have great advice There is a cannabis activist called Clark French he started the united patience alliance when he was diagnosed with MS at 18 The name of the group has changed now but they can fund people diagnosed with MS to see a private neurologist trained in medicinal cannabis and also help with the cost of the medication which I believe is high dose CBD oil with a small amount of THC not enough that you would ever get high(similar to the ratio they use for children with epilelepsy) I know its all so difficult because we are mostly on our own but trial and error and research research research Ther are 4 private medical hospitals in London that you can self refer to one the initial payment is 100 for consultation then 99 each follow up appointment and about 200 a month for medication but like I said there is charitable funding available It was through the united patience alliance but now They have changed their name something like patient access to medical cannabis but I suppose you could contact Clark French directly through face book and he could point you in the right direction There is lots of help and advice just need to know where to find it So sorry I can’t give you anymore advice than this as It’s illegal (unless you are rich) all the information is out there don’t give up wishing you the best of health what ever choice you make Love Jane
Thanks for the advice mully, I will continue with the 1 I’ve got for now. Unfortunately I can’t get to Guersey, would have been nice though. Honestly its a mine field, I can’t understand why our neuro’s can’t just prescripe it.
Thanks Jean x
I also find that black seed hemp oil 10% (locally sourced near where I live) seems to work wonders for me. I have tried cannabis based CBD and didn’t find that it helped as much, if at all.
Ultimately its what sort of relief you are looking.
I guess CBD oil and Sativex might help with painful spasm, nerve pain ect ?
I was looking for something that helped with my actual mobility, the heavy stiff legs, hence experimenting with CBD oil and then moving onto Sativex .
Unfortunately neither helped with my mobility what so ever.
I found that the CBD oil did absolutely nothing what so ever, and the Sativex actually made my legs feel heavier.
I had high expectations for Sativex, I really did think it would help, but after many months of experimenting it was obvious that it was not going to work.
When I spoke to my MS consultant & nurse about my disappointment in Sativex, neither of them were in the least bit surprised.
Living in Wales and already being approved for Sativex I could easily just add it to my prescriptions at anytime, but I think it’s a total waste of money having a medication on repeat prescriptions just for the hell of it.
Hi Jactac So sorry it didn’t work for you I was diagnosed with primary progressive multiple sclerosis and antiphospholipid syndrome 20yrs ago (my prognosis was extremely poor) As I had as well as the MS suffered multiple DVT’s iliac femoral DVT pulmonary embolism and a stroke I was the most conservative person ever and any kind of drugs or getting high was out of the question I was on every prescription drug going I had 6mths cyclophosphamide(chemotherapy) to try and switch off my immune system It didn’t work I was also prescribed warfarin for life I long longer take any medication apart from cannabis in different forms I don’t smoke it I take different concentrations and balances of oil at different times of the day I tried smoking cannabis ( weed once) It gave me a pounding headache and made my body heavy and exhausted Sativex I wouldn’t consider as it has been so horribly messed about with and bares no relation to the actual benefits of the plant What I can say is that I couldn’t walk and had to self catherterise take medication to help me move my bowels drugs for pain dugs for sleep anti depressants and drugs to thin my blood I can now walk my bladder and bowels are ok and I take no medication I still have some residual damage to my body ( weakness on my left side, although no one would know to look at me) and I do get muscle spasms (from nerve damage I presume ) problems with my eyesight I took cannabis not to help me cope with the misery of the disease or for escapism but to regain some of my life I was inspired by the documentary by Clark French who went to Sanfrancisco for cannabis treatment for his mS he went in a wheelchair with a catheter then after the 60 days treatment he walked across the Sanfrancisco bridge unaided and without wheelchair or catheter He is now a cannabis campaigner and formed the united patience alliance He’s definitely worth a google ! I’m so sorry if I sound a little Evangelical but cannabis has worked for me and I may be just lucky but I desperately wish there was more help or at least more access for those that want to at least try it I hope you are as well as you can be this is such a shitty disease wishing you all the best
Grassroots Documentary
so the 1 I’m trying is 1000mg raw cbd oil 10%, organic cold pressed hemp seed oil and hemp extract, any thoughts on this 1 anyone ?
Jean x aka greenhouse
Hi Jean
I have been using a similar oil of similar strength. Mine is marketed as “Black” seed hemp oil though. I have been using it for a couple of months now and it has been a game changer for me.
Are you seeing any benefits? my first breakthrough was seeing a reduction in leg spasms and my vision improved.
Hi anon, no mine doesn’t say black and to be honest 8 days in and nothing and now I’m taking the full dose, if I’m honest I’m disappointed 
I get mine from cbdiablo in Edinburgh, where do you get yours ?
Thanks Jean x
I’ve messaged you
thank you for that, I’ve replied
Hi Greenhouse check out your local CBD shops most have facebook pages look for their customer reviews also find one that looks friendy some can be a bit daunting but don’t be put off visit a few and check out who you think is most knowledgable and you think you could develop a relationship with be careful though not all CBD shops are the same and It’s worth going around a few and having a chat until you find someone you’re comfortable with They really can supply you with something that has a better chance of working your old oil won’t be wasted you can keep taking it Imagine if you had an Iron deficiency and you were prescribed tablets by your GP it can take 3 to 6mths do start feeling well and get benefits from the supplement because we know that we accept it Best of luck x
Thanks mully, I got mine from CBdiablo in Edinburgh, I’d been on the CBD bible site and they rated this company + I like the fact that they give 20% to mental health charity, I will keep taking this 1, but another user has messaged me with a site they use and could recommend, so if I get no joy with this 1, I’ll try that 1, thanks again.
Jean x