Hi Min and Chrissee
Yes Botox on the bladder does work. Many people swear by it, say it’s changed their life. If you experience bladder spasms and possibly incontinence as a result, or just constant trips to the loo regardless of emptying your bladder fully, it does the job. It basically freezes your bladder (imagine how Botox freezes a forehead, then apply that same thing to your bladder!) So any bladder spasms stop as a result of the Botox. And if you are sometimes, or frequently incontinent, that stops too.
It’s done either under local or general anaesthetic and is a series of little injections to the bladder wall following the anaesthetic, so even under local you don’t feel anything. The urologist sees what s/he is doing with a camera, and even more ‘exciting’ you can see what is going on via a TV screen. Whether you’d want to I’m unsure. (I kept my eyes shut, seeing the inside of my bladder as little needles go into it isn’t something I cared to watch.)
But, the problem is that following the bladder Botox you are unable to wee ‘normally’ (for those of us who use ISC all the time already weeing without a catheter would be unusual!), so you have to use intermittent self catheterisation (ISC). And because you can’t wee naturally, you need to be familiar with ISC before you have the Botox, not after. So I would expect Chrissee, that you need to try ISC for a while before leaping straight into Botox treatment. Urologists are generally surgeons, so they think of surgical solutions to problems. When you see the urologist, talk about ISC. You should probably see a bladder specialist nurse to discuss ISC first.
I had bladder Botox a couple of years ago. It did work, and yet it didn’t. My problem was not bladder spasms, it was (and still is) a feeling in the urethra that says ‘I want a wee’, like a small irritating child, all the time. So the Botox didn’t help. And neither does any poxy thing. I just live with it.
Good luck for Monday Min.
One last thought - there are lots of people on here who’ve had bladder Botox, try doing a search on the two words and you’ll find many, many posts. I have no idea why others haven’t answered you Min. S x