Two weeks ago I had botox in my bladder. My reason was because of bladder spasms, I can’t release the external sphincter so don’t get leakage as such (unless I have a UTI for some reason). The spasms I have in my bladder are the kind where a small voice is saying “I want a wee, I want a wee, I want a wee” all the flipping time. And vibration makes it worse so travelling any distance is miserable. It’s like taking a child on a journey, and I don’t even have the satisfaction of telling it “you should have gone before we left home”, because I always do!!
I already use ISC because I can’t wee normally at all, I would’ve thought by now I’d have been able to at least reduce the number of times I use a catheter, but it’s still about 6 times a day. And because I’m constantly feeling like I want to go, I test my wee for UTI several times a week, sometimes twice in a day.
I was told that it can take up to two weeks for the botox to work and I’ve even read that it can take longer than that, not that I can understand why this could be the case. (You’d think it would work pretty quickly, but what do I know?)
If it really isn’t going to do the job, I don’t know what else I can do. I’ve tried drugs: Betmiga raised my LFTs, Vesicare gave me really swollen feet and ankles, Oxybutynin was a nightmare for dry mouth, especially combined with other drugs. It seems like my liver is likely to react badly to almost any new drug now so I don’t think I can try another.
Has anyone else had botox for bladder spasms? Did it work? How long before it took effect? Has it failed for anyone else? Has it in fact failed for me, or am I just impatient?
Alternatively, what else do people do when they have an over-excited bladder that has these kinds of spasms? Are there any alternatives that I’ve not thought of?