Just wondering if anyone has any updates on their experience of taking biotin ?
Well, lisar, I remain a convinced Biotin user.
Depending on just how bad you are, do not expect too much - and you could be well pleased.
You can check out my first nine months here:
but just remember that it is âback-to-frontâ so start at the bottom and work back up.
Geoff
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Hi,
I donât use Biotin but I find that vit B12 is really effective.
Adrian:)
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Well I still take it - no major changes but apparently my toe nails are in good nick âŚI take that as a huge positive!
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lts now 12 months since l started taking Biotin - following the facebook group Biotin for Progressive MS - and the MedDay Trial.
The cost for a years supply - well actually it was 333day - was ÂŁ120. So a bit different from most meds for MS. And certainly not a profit making scheme for neuroâs and big pharma. Except MedDay are trying to âpatentâ their formula.
l think it is the âunseenâ benefits of biotin that are the most important. Hopefully, remyelination - which has been documented.
l do think the newly diagnosed would benefit well from this remarkable B Vit - and B12 - the best.
lt can take 9months before any benefits are noticed - so do give it a good trial. Stick with it. lts bladder control that is one of the first improvements - Works well with eye problems -ON - which is what it was first devised for.
For me - well 33yrs of PPMS - l know short of a miracle l will not be âcuredâ. But l do have loads of energy - and better strength.
Biotin works also as a anti-fungal so good for candida conditions. Some people find their condition worsens after a few weeks - this can be candida die-off. And is a good sign -so stick with it.
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Spacejacket
im due to see my Nuro in next few months, so should I ask to be prescribed B vit and B12 what b vit is it b1 or something else?
im not on any medication at the moment as I donât fit the current criteria as yet as in more than 2 relapses in two years.
i do take vit d 5000 ius. Tablet form but wish to change to spray do you know the name / make strength ?
thanks Ann x
Ann, lts not on prescription - you do not need one for vitamins and minerals. Just join the facebook group Biotin for Progressive MS - and see what people with MS are doing globally. Lovely friendly lot. They will guide you where to order pure Biotin [B7] from. B12 l get in liquid form - Natures Bounty sublingual 5,000mcg daily.
l do not bother anymore with neuros. As l have PPMS - they are not interested. ln 33 yrs l have had one mri - and seen a neuro 4 times. No MS nurse. When l asked about being tested for Vitd3 deficiency - l was told âthere is no test for vitd3â and to drink more milk! This was from the head neuro in Leamington/Warwick. So l get my vitd3 levels tested by CityAssays Lab in B/ham. lt is a postal service done with pin prick test - very easy.
I gave Biotin a try for 6 months and noticed nothing much. My nails were stronger, but not hair and I still have ms. My right leg is very numb and my bladder isnât good.
Biotin can really mess up your thyroid (thanks Barts blog). It may be on the archive, Iâll check.
read everything you can. It rarely stops me from trying something, with the exception of HSCT and venoplasty. No way.
i take LDN too.
Was it that biotin can mess up the thyroid or just make standard thyroid tests look that way leading to misdiagnosis? I remember Multiple Sclerosis Research: If you are taking sneaky Biotin tell your doctor before they do blood tests.
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Biotin does not mess up your thyroid - it just messes with the system they use to test your thyroid levels. Go off it a couple of days before you have a thyriod blood test.
The high signal T2 lesions in my spinal cord have vanished according to my last scan in February 2016. They have been present in 5 scans between 2011 and 2014. For the last year I have been having weekly B12 shots and 300mg of biotin daily. I am waiting to see what my neuro is going to say. I truly hope he is not going to announce that the scan was misread or something. The GP gave it to me but couldnt comment and the normal c-spine MRI result. My theory is that remyelination has occurred over damaged nerves - which will hopefully prevent them from any more deterioration.
Improvements have been bladder, bowels, energy levels and lâhermittes has gone. Spasticity in right leg muscle and foot drop still there. To be honest I think once a muscle turns spastic there is no return !
Moyna
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google - MedDayâs MD1003 a Biotin, Shows âRemarkableâ - Efficacy in TreatingâŚ
Biotin does not âmess with your thyroidâ, it messes with the test. It messes with a lot of tests (giving both false positives and false negatives. You can see a list of the tests it can skew at:
http://medday-lab.com/
Barts blog suggests a 2-day washout is appropriate - I have played it safe and gone for 5-day.
Geoff
Thank you for your kind explanation. It is much appreciated.
xxxx
Geoff is correct - it is only the actual test result that is messed up â but then many meds do the same. l am starting my second year on Biotin.
l have learnt a lot from pwms in the Biotin group. One thing was that the continued use of Baclofen actually damages muscles - this was from a pharmacist with ms.
I have deteriorated on biotin, after taking it pretty religiously for 9 months.
Hello all, I have been taking biotin since June 2015 & the main benefits for me are improved hair, skin & nails. However improved nails mean my toenails also grow quickly which means I have to cut them more often which is a problem for me when I have to bend also I agree with Monya â once the damage is done it is hard to repairâ. My foot drop & spasticity has not improved & my balance appears to be worse resulting in several falls.
i also agree that it may be delaying progress which we will never know as no one knows how their MS will develop without the biotin. I believe that if it is doing me no harm & it is doing me some good even just hair, skin & nails I will keep taking it, also the powdered biotin is not too expensive
SYLVIA