I’ve been sharing the saga of my bladder here on and off for over two years. Today is day one of Betmiga, 50 mg and I have my fingers, but not my legs, crossed!
Ive been told it could take five or six weeks to notice a difference.
Have any of you got anything to say, helpful or otherwise?
Hi, been on betmiga a while now. I was on oxybutynin before that. the main big difference is that they dont cause me to have a dry mouth/throat.
i still get bladder spasms on the loo and by pass my spc.
if i feel as if i am going to wet myself i take a tolterodine…feeing like that now actually!
polx
I was started on Betmiga 50mg. They made a difference.
Continence nurse wanted me changed to Tamsulosin (Diffundox). They made more difference
Geoff
So many people on the facebook group - Biotin for Progressive MS - have found that taking Biotin [B7] in a high dose as used in the latest MedDay Trial - no only helps their MS - but give them back control of their bladder. lf that is the only benefit - it is worth taking - as l think incontinence - bowel and bladder is the worst part of this awful disease.
LDN also helps with bladder control.
Too late for me - like Boudica - l have a SPC - over 20yrs now. But l do still take LDN and Biotin.
I too have a long history of bladder problems. Six years ago, I remember emptying my bladder completely when I didn’t mean to, after having to wait about 30 minutes to get to a loo. For about three years I had urinary frequency (having to go to the loo every half hour or 40 minutes) in the morning and urgency (starting to wee before I was on the loo) all the time. I used to self-catheterise before I left the house, but still had problems. I tried Vesicare, which didn’t seem to help at all, and Regurin, which didn’t help much. I was wearing medium thick pads every day and still being wet most days.
I arranged an appointment with the doctor who does bladder Botox. It took a few months for the appointment to come through and by the time it did, my bladder control had improved out of all recognition. I decided not to go ahead with the Botox. Since that time, about two and a half years ago, my bladder control has mostly been fine. Most of the time, I just wear a very thin pad and I don’t end up wet. Things got a bit worse a couple of weeks ago and I changed from Regurin to Betmiga. No-one told me that it could take weeks to work and, for me, it seemed to start working after about a day. I have been good on it - no frequency or urgency, so back to very thin pads.
Hope this is useful - I think my experience is quite unusual.
For me it’s been the best thing since slice bread I was on oxybutynin it was OK but I was up through the night at the toilet 3 if not 4 times a night but with Betmiga I’m only up once if at all and through the day I can go for hours without looking for the loo
Hi
I started Betmiga but it didn’t work for me (plus raised my LFTs). And talking to the urology nurses, it works absolutely brilliantly for some people but not at all for others. Hopefully you’ll be one of the lucky ones.
Btw, still waiting for botox to work. I’m now at 10 days, apparently it is likely to take 2 weeks to work and sometimes up to 3 weeks. So still waiting.
Sue
Hesitancy and retention were my biggest problems with control issues if I got any infection. Now with Betmiga, I worry a lot less. I don’t panic if I barely trickle when I wake up in the morning, as about an hour after tablet I need a proper pee. I was terrified about the idea of ‘relaxing’ the bladder but actually that’s ok and I might still stop/start but been on it a few months and all’s good x
Very useful. The start of my bladder problems go back a number of years, probably around 2000 but it was slight then, and it’s worsened steadily. I thought at first it might be because I hadn’t done my pelvic floor exercises following my hysterectomy in 1995. I was diagnosed with PPMS in 2006.
I’d be more than happy if I can go back to thin pads, instead of dealing with the thickest soggy pads several times a day. I’ve been self catheterising since last July, and that with first solefenacin, then Tolterdine and latterly oxybutynin has helped with frequency but none have solved the urge incontinence. I don’t empty fully though. If the oxybutynin had solved the urgency I could’ve coped with the dry mouth.
Hopefully this is going to sort it, but at least I know if it doesn’t I’ll be referred to urology and there’s still options left.
Thanks Eve x
This is really, really encouraging. Thanks xx
I’m on 50 mg Betmiga since Saturday. How long before you noticed a difference?
How long before you noticed a difference?