So, basically four/five weeks ago I saw my GP who decided to refer me to a neuro due to a long list of worrying symptoms she could not diagnose herself and the fact that they can’t run any more blood work. I was informed that I need to see the neuro and if they find nothing then I will be given the diagnosis of ME/CFS. Since then, I’ve been back and forth for extra blood work, an ecg and update phone consult with her regarding being signed off further and due to new symptoms developing.
At the first hurdle of being told she had no clue what was wrong with me and didn’t quite wanna tell me that she even thought it might be ME/CFS, I managed to pull myself together enough to talk to my manager about the situation. Rather than be oh wow, that sucks, I’m sorry, why are they referring you to neuro, etc. It became more of a “why does your dr think it’s ME”, “what symptoms are you having” and “I don’t think it’s ME”. (Hence sicknote detailing everything was under investigation)
So, after that backlash I then had to call in to let the team know I wasn’t going to be in for two weeks. Which I was then told “This is the way I see it. You’re 20-something and I’m 60-something and I’m still going.” De-light-ful! (This was someone else not the manager might I add.)
Next sicknote I got my father to ring in because at this point I started to research some of what a neuro does and diagnose and realised this could be more than just ME.
Now she’s insisting on talking to me. I honestly am barely holding my head up from what feels like a rushing river I’m being thrown around in. The questions she wants answers to, I can’t. Even my GP said she doesn’t know what to think anymore.
Regardless of the conditions at my work place do I have to honestly speak to her? Am I allowed to hold my rights about my health above everything? I’m having help in just about every aspect of my life right now, including finance and care.
Sorry for the little rant/long story. Any advice I’d really appreciate. The whole situation is stressing me right out!