Well after 4 weeks and 3 days of waiting, having been told I should hear in 10 days, I phoned my neurologist’s secretary and have been told the letter should have gone in the post yesterday, for my mri. Has anyone received a letter before to say the mri has showed stuff and they need to make another appointment? My neurologist said if mri is fine he’d refer me back to GP. So am trying to work out if he saw anything if I’d have received a phonecall if he wanted to see me again, or if it might be in letter. I know I’ll soon find out. Just tying to prepare myself for what’s most likely. I really can’t work out in my head what I want the news to be. I don’t want m.s, but I know if it’s not then it’s back to limbo land x
Daisy. You won’t know until you know! Every neuro, every hospital has different procedures and those individual procedures can vary depending on how you came into the system (ie A&E, GP referral to neurology, GP referral for MRI etc etc). Overthinking the “if they are doing it this way it must mean this” is as pointless an excercise as reading your tealeaves. You are going to stress yourself out pointlessly and stress like that is bad for anybody.
Fingers crossed your letter arrives soon and gives you a concrete idea of what the road ahead is going to be like - but remember, a letter (or even your next appointment) is unlikely to give you the answer to where that road is going to or how long it will take to get there.
Hi, yes I know you’re right really. I just know for me that if I’m just referred back then it means M.E, which is what I was diagnosed with years ago. Any other reply prob means they’ve found something, which I realise could still lead to nothing. I don’t really feel stressed, just so fed up of being stuck. At least if I’m referred back I should get more help for m.e, but at same time such a frustrating diagnosis, as so many people don’t take it seriously. If they’ve found something I suppose I see it as hope of a solution or at the very least belief. I will try and be patient, something I very much lack. Thank you for reply. I suppose just writing on here helps gets it out of my head x
Hi Daisy
Quite often on this forum, people get a copy of the letter sent by the neurologist to your GP which explains (!) the findings from the MRI. And those letters can range from difficult to understand to total gobbldigook.
So, when you get the letter it may not answer all your questions, it may not say whether you’ve been discharged from the neurologists list back to the GP. And it probably won’t say you’re being offered another appointment with the neurologist.
If you get the letter and don’t understand it, try phoning the neurologists secretary to find out if you’re being given another neurological appointment or discharged.
Sue
Thank you, it’s helpful to know all of that. Typically no post has come today. I realise it may still be a few days, and as you said, I may be none the wiser. He did send a letter after first appointment and it was quite easy to understand, so hopefully he’ll make it clear if he wants to see me again, if nothing else. I just admit some of last letter was gobldigook though. At least today I may as well forget about it x
When it does arrive you might get some help deciphering it from the sticky topic at the top of this forum caled “A beginner’s guide to the brain and MRI”. It’s incredibly useful. I think we sometimes forget that reports on MRI scans are not designed FOR us to understand they are simply ABOUT us from one expert to another but they are baffling sometimes.
Thanks. I will take a look. Yes a shame it can’t be written in words that make sense to the average person as well as to the medical professionals.x