*Im a 50 year old male, I’m getting very concerned and anxious from some recent symptoms
*In late September 19 I got pain on contraction in my left forearm and bicep and shoulder totally unexplained, this carried on to ache on and off. I thought it may be tennis elbow or something but not sure how I got it
*I was also feeling nausea on the school runs in the mornings that I’d never experienced before in late Dec 19
In late December my left heel one morning waking up I could not put down was so painful and hard to walk I had to use ball of my foot to walk so was limping. It took a 7-10 days before I could walk normally again.
First week in Jan I started getting fasciculation’s starting in calves/shins/ankles occurring continually at rest. These movement were visible.
I was also getting sporadic fasciculations in arms/thighs and a few times in my tummy.
*I am also experiencing tingling round my chin mouth and left cheek and could feel my lip quiver
Now I’m also aching in both my biceps and thighs on and off. Paracetamol and Ibuprofen seem to help.
*Also having night sweats a few nights having to change my top in the night as my PJ top gets damp.
*I’ve seen my GP and she did some basic neurological tests reflex, walking follow finger, and arranged for bloods which I will get on Friday this week, and she hinted I may need to see a neurologist, but she needed the bloods first.
Since I saw my GP I had some further symptoms over the past few days.
*I’ve started high frequency of going to the toilet between 12 to 15 times in a day, which is very trying.
I’ve also stared to get tingling in my hands and forearms and at night I get a burning sensation in the palms of my hands and forearms and in the middle of my upper back. The burning pain goes on movement or touch.It lasts all night sleep is disturbed.This is the worst ever sensations/feeling ever.
The only other medical issue I have is had my thyroid removed 10 years ago and am on thyroxine but this has all been good for 9 years.
Any advice /tips or anyone having similar symptoms coping with some of this.
Is this obvious MS or something else
(I was thinking of going privately next week to see a neurologist after the bloods this week as my GP said even the urgent appointments were taking a month or so.)
I’m sure others would be able to answer your questions much better than me but the thing I’d say is that MS has similar symptoms to so many illnesses and conditions that it is impossible to say whether anything is ‘obvious MS’ or not.
The best thing to do is see your gp as you are doing as see what advice referrals they can do for you.
Also try to keep accurate records of symptoms as this could help build a better picture of what is going on.
The other thing that might sound silly but try not to make any assumptions about what illness/ condition etc might be going on as it may cause you to ignore certain symptoms that could be important and people can then focus too much on things that might be coincidence. I mean this with people generally btw not specifically you! Hope I’ve explained that how I mean it to be.
Have you had your prostrate checked at 50 these things can start i.e peeing a lot.
what are fasciculation’s ?
I think you have so many varied and odd things, non of which scream MS but could be other things.
MS is an odd thing. If i went with a list above my neuro would just switch off.
Its better to concentrate on things that are actually affecting your everyday living.
Mine when it kicked off was stiff legs and cramp I couldnt get out of bed since found they are classed as spasms. Foot felt freezing cold and numb, my left side was having issues, my left leg from knee down I felt nothing.
when i saw the neuro i failed all the tests on my left side. I struggled way back then to walk well. although i know it was only the start.
I dont remember all the odd bits and pieces until later as it progressed and I became less able.
I just read down and saw you had your thyroid removed weirdly enough i was going to say have you had your thyroid checked. I would go for something like that to be honest, sometimes the meds can suddenly screw with you or they are not working right.
Your symptoms dont scream neurologist. You say you spoke to your GP what did they say or advise? If you can get them to refer you to neurologist you can then see them private. It took me 2 days when i did that.
Would definitely go Private rather than wait a month for something neurological. You might want to make sure your blood work included both of the vitamin b12 tests. I read somewhere that some GP’s don’t do the folate test (absorption ability) which has led some patients with a vitamin deficiency undiagnosed for years. Kind regards Jonathan
All thanks for support and feedback. Bloods came back in normal range including b12, and folate (what ever that is) my calcium was just a smidgen below range. So GP has referred me to NHNN. But in the meantime Ive lined up a private Neuro for next week. Have a good weekend all
All just an update. My NHS appointment came in before private due to a cancellation slot. Anyway Neuro wrote and said I’ve likely got BFS Benign Fasciculation Syndrome which is a good outcome. Have to repeat my bloods and line up NCS and EMG and repeat bloods GP did again. So just ned await a while now.