Good afternoon everyone,
I hope everyone is having a good day.
My neuro called me today to discus the message I left for her last week when she was on holiday, (she is very good).
She told me that my severe twitching/legs kicking out could be an old symtom that has materialised greater and dosent believe it to be anything new. I explained how it is all day but today is a good day for me, if I wake up and its bad then I can expect 3-4 days of it before I improve and then it starts again. She said if it gets worse then she can put me on steroids, but I am on the cuff for this treatment.
I have my VER EER and my EEG on the 5th and 9th with my follow up with her on the 27th. She has said that I may need another LP just to confirm its not infection and it is imflamtion as I did have 5 white cells.
The thing is, is that I have looked up inflamtion on the spinal cord and a brain lesion, she keeps reffering to it as inflamation but could this still be MS, I know this can be a cause amongst others or is she still not wanting to say to much until she recieves the other results? she said she doubts they will find anything on my EEG but the VER is to look at my nerves in greater detail which she expects will help.
Anyone elses thoughts would be much appreiated as I am so confused as to what is actually going on now. I am prepaired for MS even my wife believes it to be MS as she had a friend with it and see so much simular stuff between us, but she still has not mentioned MS to me. (sorry for the long post)