I am a 42 year old female with various symptoms similar to MS.
I have had numbness and tingling in feet and legs constantly for nearly two years, with intermitant tingling of my face (lips, nose, cheeks and tongue) and hands. Constipation for 4 years, and recently waves of tiredness with heavy arms and legs, lightheadedness and hot flushes. Frequent/urgent urination is controlled by giving up caffine. Every day I take magnesium hydroxide, psyillium husks, aloe vera, prune and senna tablets and dried apricots and prunes which makes the constipation just bearable.
I have had a number of tests for the constipation - all clear but for lax anal tone. I had a MRI of my brain and cervial spine over a year ago which was clear. I saw a neurologist who did suspect MS at first but after a clear MRI of my spine, discharged me. I am now back under the GPs care who constantly tells me that they may never know the cause of my symptoms.
Due to my recent tiredness and lightheadness I have researched getting an MRI done privately at a cost of £658. The scanner is a 3 Tesla, whereas most nhs hospitals are 1.5 - I am lead to believe. I have asked my GP for a referal but so far they have refused to sign the form due to the two clear scans. I now have an appointment in 2 weeks and I will ask again.
I have printed off several copies of various MS sites detailing that first MRI scans can be clear, to take with me, but still I am expecting her to refuse to sign the form.
Can anyone out there please give me some advice. Am I being neurotic to still suspect MS when all tests are negative? I am quite prepared to ‘waste’ my money on the private scan just for peace of mind.