I used to visit and post on here often, when it was the ‘old’ version. I have not posted since the change but have often popped in to read posts and have found comfort from reading them. It is nice to see other old users (Karen, Poll, Debbie) ect and newer ones too.
I have come back as still in Limbo and finding things really difficult to cope with. I will try to cut a VERY long story short…starts about three years ago with what I thought was a back injury. Very thight heavy pain in lower back and tummy like a TIGHT belt legs heavy like walking through treacle! legs and bum numb and cold like sitting on a cold brick wall. After numurous GP visits one identifed neuological problems, blance, gait, limb weakness, and right foot drop and tremous. Saw a neuro constultant and had MRI brain which showed several leasions in the “right places for MS” spinal images were unclear due to metal work (rod for scoliosis).
He said it was MS but wanted an LP to be sure, he did say if this was clear then he would still be sure it was MS! Sadly he left before results came through and I now see a new reg, who is not so keen to give a dx. She said I defanitly have a neurological condition, but there is little point in keep expolring as there is no treatment for MS or other neuro conditions! She is happy to treat my symptoms: urinary retention, neuro pains= amytrptalin Spasms = diazipam this is mainly for the lovely named MS hug wich I get frequanlty, She is the one who identifed what the pain was, yet still what diagnosis me…no wounder I am confused!
I have also loss of field vision and depth perception and had to stop driving. And I have odd sensations such as wet patches, burning and pins and needles alsorts of odd stuff.
So now I have rattled on and given a brief discription of some of the symptoms my questions is do I take her approach and watch and wait, treat symptoms as they arise or do I seek a second oppinion?
Phewwww Thank you for reading!!!