Hi , i am new here and this is my first post , ill try and keep my background history as short as possible.
I started in March with severe hand tremors , which progressed to pins n needles in both feet, over the months since then things keep progressing , numbness , burning , tingling , itching and pain sensations all on my right leg.
Numbness spread up my right side and then started with the same sensations in my right hand in july, I lost all control of my arm and was unable to use it at all. I have times my ankles feel like someone has tight elastic bands round them, this also happens to my chest area.
I have gradually regained some control in my right arm , although sensations and heaviness in my arm still there.
I have suffered in the past and occationally do now with severe neck pain and stiffness.Walking is very difficult and painful and i am loosing the need to go to the toilet until a sudden feeling of desperation hits me.
I paid to see a private Neuro who wanted , Brain neck and spine mri, i was transferred to the nhs and had the mri.I was then required to have a Lumbar Punture…after 4 failed attempts and also 5 failed blood test attempts , i left there in pain , ill and feeling a failure.
I had the mri results Thurs and have 5 lesions on my spinal cord , several insignificant spots on my brain but was told 1 was in an area that effects balance , which i expected as my balance is poor and had several falls.Blood tests were taken again thurs and have been told a repeat mri on my brain neck and spine in a year. That i thought was fine as i struggled with the mri…but…I was also told he would see me again in a year and wont diagnose MS.
I am worried that im getting no help or outside support and have to wait another year like this? I am unable to take a bath , i cant stand long enough for a shower and feel dreadful!My husband and 2 older sons do all they can for me … do i really have to wait another year like this without any outside help or support or seeing anyone regarding all my ongoing symptoms?
A diagnosis doesnt cause me anxieys and depression … its the feeling that noone is really doing anything to help me.
Sorry i guess my post was longer than i thought it would be x