Hello, Its been a long time since a last asked for advice, or even visited this forum, which is a good sign I feel!.
A quick recap - I had ON in October 2011, lost all my vision, and had 5 days of IV steroids and it did the trick. It took a long time to recover, physically and mentally. My scans and LP were all clear which was great news. Then last september I had some sort of attack - weakness in my arms and hands particularly and extreme fatique. I worked through it, had another scan which was all clear. Although it did show a problem with the discs in my neck. i was referred to the Spinal team and they reviewed my scans and wrote to me sying it wasnt significant. I broke my back when I was 16. I’v e already had surgery on it. But in general my back is ok now but I was surprised they wouldnt see me.
Well, its happening again. My left arm in particular is very weak, it feels like water is trickling down it. And I feel so tired - bone tired. I’ve also devoped a wierd tremor - for example as my hand gets closer to the key board my hand shakes but then stops once my hands make contact with the keys.
I saw the neuro in February and was discharged. But I was given a clear plan that if the first signs of ON returned to ring and I would be given steriods. if it was out of hours to go to A&E.
So what do I do. Ride what ever it is out, go to my GP, I just don’t know. My scans have been clear so I feel its hard to keep going back. But something is definately wrong with me.
Thanks for reading this
Sue
