I'm not sure what I am hoping for by posting on here again, maybe just the chance to offload a bit. anyway a quick recap. Started with a tingling senstaion in my right toes, then a kind of numb feeling in my right leg along with weakness of right arm and leg. I also had reduced bladder sensation (unusaul for me as have overactive bladder) Saw neuro who said mild ataxia, weakness and brisk reflexes on right. Had MRI of brain and neck which were clear, had a letter from neuro who said no further tests needed as demyelination had been ruled out. I continue with some weakness, although improved to how it was and also have lower leg stiffness which gets worse as day progresses.
Gp wanted second opinion and after lots of deliberation went to see new neuro. Very nice man who did some tests and has now written to GP and said that i had coordination problems affecting right side, mild weakness of right side, i was unable to walk heel to toe without assistance and he found relexes to be normal with the exception of plantar reflexes which were mute on both feet. These had previously been normal. He had reviewed my previous MRI and if they had shown even the slightest abnormality he would have requested lumbar puncture and other related tests but as the MRI is normal he agrees with the first neuro that demyelination can be ruled out. He will see me again in six months to make sure that I continue to improve.
The thing is, I don't care if I don't find out what is wrong, but i would like some relief from the stiffness, the neuro said that without a diagnosis he is unable to prescribe anything, and that hopefully things shoul contnue to improve. I am fed up with making excuses as to why I can't do something, ie running in races with the kids. I can sort of run but I quickly look like I have had a few drinks with a leg that doesn't go where I need it to.
Ahh rant over, thanks for reading, feel better just for posting this.