Advice please

Hello everyone I am really after a bit of help please. I am relatively new to ms having been diagnosed at the end of July. I am having a relapse at the moment and was put on steriods on Monday. I still not got the hang of understanding when my body is really tired until it is a bit too late really. My heart starts to pound and beat really fast and I feel really awful. I will then go and have a lie down for about an hour and then it all starts to slow down but even though it has all slowed down I still can’t really do anything and I still feel a bit sluggish. What is happening?

Hello anon

Sorry to hear your having a relapse. Is your gp aware of this problem with fast heartbeat anon?

You really should be getting this checked out…make sure everything is ok.

If your gp gives you the all clear, then its a case of planning your day better. Listening to your body more and practicing some relaxation techniques.

Take care


i am new to all this and not sure if I have ms or not. I am suffering from seizures and numbness in my legs and arms. I have just had a eeg and a scan on my neck so waiting on results. Can anyone tell me what to expect or look for.

Thank you

Hi John,

I’m not sure if you are aware you’ve replied to a discussion that’s almost two years old, are you?

For the future, your posts will probably get more views and replies if you start a fresh topic of your own, instead of replying to an old one from several months ago.

That aside, there is nothing really to expect or look out for. The possible symptoms of MS are very many and varied, so one person’s common symptom may be something somebody else has never had at all.

There is a slightly increased risk of seizures (epilepsy) with MS - however, it’s NOT a common symptom, which makes me question whether MS is a likely diagnosis in you case.

Also EEG is not a usual test for MS - it certainly might be used to look for epilepsy.

As you’re not yet diagnosed (and even if you were) it’s impossible to predict what to expect. MS does not typically cause sudden danger to life.

I suggest you just keep a note of anything odd that happens, as it’s easy to forget, but anything could be a useful clue when you next speak to your consultant.

You do not need a detailed diary of everything that happens every second of every day, but just jot down anything new or unusual you notice. Roughly when it was, how long it lasted - anything in particular that seemed to trigger it - anything that made it better. These could all be clues that help point the path to diagnosis.

But there is nothing at all that always happens, so it’s a bit pointless to write a list of everything to watch out for, as nobody gets it all.

You know yourself what’s normal for you, and what’s not. Record any stuff that isn’t normal.


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