Advice Please

Hello. I am 32 years old and have two children. One is 4 yrs old and the other is 2. I am in the process f being diagnosed with Ms or some other neurological issue. It is believed to be MS but we are not certain yet. I have had many tests and procedures done. All of my blood work is normal. My brain scan showed nothing. In the meanwhile I am unable to work in my profession, healthcare. I continue to have many of the symptoms and don’t know what else to do to bring me closer to a diagnosis. In the meanwhile I am having periodical numbness of the limbs and it is getting worse to the point that my legs quiver while I am standing to try and support myself to stand. I drop a lot of stuff or knock things over. I am always tired. I have been taking nuvigil for approximately 2 years and I can sleep right through it. I sometimes have to swallow my food there or four times to get it down. I have a lot of tremors in my hands. I also have a lot of joint pain and muscle spasms in my legs really bad. I am on a lot of different meds but it is still occurring. I have good days and bad days. I know this is probably too much info but if I have intercourse my legs shake really bad and I can hardly stand afterwards. I am supposed to see a new neurologist in 3 wks. In the meanwhile I am waiting for an MRI of the spine. What else can I do to have a correct diagnosis?

I’m sorry to hear you’re going through a hard time :frowning: unfortunately it can take some time to get a diagnosis, this is the time we call 'being in limbo land '. It is frustrating and extremely hard at times. We all eventually get through it though :slight_smile: the waiting times for appointments and tests can take some time and I think that’s what makes it a slow process.

while you are waiting for a diagnosis , it’s important to see your GP, he may be able to prescribe things to lessen the pain and make you more comfortable. The helpline on this site is brilliant too, they can point you in the right direction of help you may be able to get.

this forum is a great place. I’ve been here some time and it has helped me enormously. Just to be able to talk to people who understand is so comforting. We also have a good laugh too.

I hope you get a diagnosis very soon Hun. I can appreciate it must be hard when you have young children to look after at the same time. I think it would be worth you phoning the helpline and seeing if you could get some help at home? Might take the strain off you a bit? Whatever you decide to do, or however you’re feeling, we are here for you.

take care Hun xx

Thank you very much for responding to my post. It is very helpful to know about this sight. I have been trying to get some sort of diagnosis for almost a year. I have been out of work since December. I hate not being able to take care of my children the way that I always have. I went to school fu time and worked full time. I have a special needs daughter that has a lot of apts. And I have to be active. Today I could not even take them to head start. I hate this. I just want an answer. Thanks for the info it really helps to see all of these posts and to know that there are other people that go through it. I am obviously not happy that they are going through it. I have a degree and can’t even use it.