Hi, I have been diagnosed with Ms since 1993 and have had secondary pregressive without remission for 18 months. Since then MS has worsend considerably. I have a superpubic catheter, a peg for feeding and my mobility has worsened. I feel that this has happened all very quickly and am worried about the future.
My neurologist has told me that disease modifying drugs are out of the question but has put me on morphine, Tizanidine, cocodamol, Oramorph, zolpiden, lansoprazole, pregabalin, amitriptyline, buscopan, citalopram, solife nacin and capsaicin cream.
I am worried for the future as my life has changed drastically over the last 18 months. Can anyone suggest what more I can do to help myself and offer advice about the drugs I am taking? Is there anything better out there?
My pain consultant has also offered lignocaine infusions. Has anyone heard of this? I have tried to research this but haven’t found much info.
Since I had the superpubic Cather fitted in November last year I have suffered terrible spasams in my bladder. Drugs haven’t helped so now I have been offered Botox injection into the bladder approx 30. This will paralyze the bladder. Has anyone heard of this as again I haven’t been able to find much info?
Sorry for this epic but I am new to this and am desperate for help.