Apologies if I’ve posted on the wrong forum!
My mum who’s 55 has had ms for the past 13 years. She’s now secondary progressive. She’s been in a nursing home for the past 4 months (which was meant to be short respite), but unfortunately due to her husband not wanting her home and is washing his hands of her were in the process of applying to court for an occupation order. She is totally wheelchair bound.
She has been getting UTI’s every 2 weeks (or what we thought), symptoms - severe drowsiness, unable to focus, slurred or no speech, severe spasticity resulting in whole body going entirely stiff in whatever position she happens to be in at the time, and totally unable to swallow. These symptoms can last minimum 12 hours to several days and come on without no warning! Having finally seen the urologist he’s confirmed that only 2 out of 5 samples were infected.
Doctor two weeks ago doubled the Baclofen dosage.
Finally spoke to MS nurse who said that the above is not MS related, but she will speak to her consultant when he returns from leave in a week. Does anybody have any insight please. We are not getting anywhere with doctors etc and it is heartbreaking to see this happening, as of late its been getting very frequent - once or twice a week
We don’t know where or who to turn to!