I’ve had one ms like attack but no diagnosis but if I have another I will then get the diagnosis. I feel scared going to bed everynight and praying I wake up ok. I’m so scared of waking up, opening my eyes and not being able to see or something. I’m also scared that if and when the diagnosis comes that I won’t be able to work or not work for many years after diagnosis. These thoughts get the better of me every now and then, tends to be when time of the month is due. On a bit of a downer :0(
Hi Anon, We all at some point get scared of what the future will hold for us. For years I had different symptoms and it was brushed aside then over 30 years later was Dx with SPMS. Try not to think of what might or might not happen. You haven’t mentioned any symptoms so I can’t possibly give you any real advice except be patient, wait and see what results you get and remember most people with MS it moves slowly. So worry when you have something to worry about, until then carry on with your life as normal. Sending you ((((HUGS)))) Janet x
Hey Anon,
I was working for 3 years after diag and had to do 3 day trade shows etc in Frankfurt (TY steroids) I only stopped working
when company went bust and was made redundant with no pay.
Anyway that was 3 years ago and I’m on my 3rd DMD and yeah I goto gym etc but feel stronger now than before dianoses.
I’m dieing to get back to work if someone in my sector would employ me.
It’s not all doom and gloom you can get involved with your local branch its a good way to casually get everything off your chest and ask any questions.
I had to have 2 lots of MRI’s battery of blood tests to rule out other diseases and a lumber puncture to see if I had the oval banding which I did.
Some PCT do not do LP as part of diagnoses some people have said here.
There is so many variations of MS and so many quirky different things it effects some get fatigue others don’t have it, left or right side weak etc etc.
My only advice is if you have to pick a DMD at some stage go straight for a interferon as this choice will help you to get on Gilenya quicker in the future.
Hi. Don’t think too deep hun. Everyone is different. I’ve been diagnosed ten years this year and still work. Work less hours than I did but this is for reasons if bring a mummy and the commitments that brings. I do okay I feel. Dodgy left leg but I manage. I’ve had rubbish relapses but I’m determined to not let it beat me. I’m 33 now so like you when diagnosed at 24 had similar thoughts. Just wanted to reassure you. Hope I’ve done that xxxx
Hi. Don’t think too deep hun. Everyone is different. I’ve been diagnosed ten years this year and still work. Work less hours than I did but this is for reasons if bring a mummy and the commitments that brings. I do okay I feel. Dodgy left leg but I manage. I’ve had rubbish relapses but I’m determined to not let it beat me. I’m 33 now so like you when diagnosed at 24 had similar thoughts. Just wanted to reassure you. Hope I’ve done that xxxx
Hi hun. I just want to reiterate what others have said. Of course it is a scary time, when we are facing the possibility of life with a chronic condition.
Please try to remember that life with MS (or indeed any serious, but NOT terminal illness), can still be a good and enjoyable life. It may need tweaking or re-structuring, but even so, with the right support, you will cope…keep talking to us here and you`ll see what I mean.
much love, Polly xx