Well, I have looked at forums like this for a while, feeling encouraged and reassured that if I was to have a diagnosis that you are all here. But, I admit, until now I never thought I would be posting and be part of it. And here I am desperately seeking some way to explain and accept what is going on.
I am a healthy 32, my dad had MS and I spent years in between thinking of my good health as blessed and worried about it thinking of it as ‘ticking away’ .
A few months ago I was struck with extreme fatigue and the feeling of my legs giving away, I had sensations like cold water being poured down my left side and felt overly sensitive to touch- and then this dissapeared. My family assured me my experiences were nothing, so I sought medical advice and again was assured ‘we don’t think its you with MS’
But I got an MRI. Today I was invited back for a ‘nothing urgent’ MRI result that they told me was routine. When I arrived I saw a locum and the doctor had not even looked at my case notes, so I was able to read them over her shoulder and pick up frightening phrases like abnormal for her age and disease on the finding. I didn’t find out much from her but what I did deduce was something in my brain is mis functioning and it looks as if my nerve ending are wearing out faster than they should be- but there is no mylenation they described white spots on my smaller blood vessels.
I want some honesty here and some of your experiences if you you feel able to share, am I on a road to MS and if I am what is next?
Thankyou for reading this xx