i was diagnosed by my neurologist after an mri showed lesions on my brain and spine! This was 6 weeks ago! I have since seen my ms nurse and I’m seeing my gp every month or so whilst I try some medication for some symptoms!
I am waiting to see the specialist and my nurse called to chase as after 6 weeks I have still not heard anything. I currently don’t have an appointment as there is 40 people on the waiting list and he is fully booked up until the end of July so anticipate it won’t be until atleast September!
I have been hugely positive and I have been so focused on getting on some treatment but today has left me feeling really deflated. I have had what the dr thinks is atleast two relapses in the last 6 months and although I am okay, I have noticeable changed. I know DMD’s don’t completely stop relapses but I feel so helpless that mentally, I think knowing I’m on something that is atleast trying to prevent me getting worse, would feel so much better than just sitting with no control at all.
how long did it take you to see the specialist and discuss treatment? Is 5-6 months normal? What if I get worse and treatment could have helped? What if he wants to do further tests which will make treatment options even further away!