Hi, I’ve posted already! Diagnosed nearly 6 weeks ago privately! Waiting on neuro appointment this Friday, have gotten worse and been struggling with heavy stiff legs/picking up my feet! Got MS nurse number from my doctor and they don’t seem interested and saying they have no info on me and that I’ve complicated things by going private!!! So presumably I’m going to get appointment with her after I’ve seen neuro! The waiting is killing me, lost all my confidence as struggling to walk and balance been all wrong! Am guessing I’ve had a bit of a relapse!! Just so disheartened and down, the neurologist who diagnosed me was so positive about how I could lead a fairly normal life with meds and some lifestyle changes!!! Am wondering if neurologist will be able to prescribe me something for stiffness and heaviness of my legs! I want to go prepared and going write down questions, just know so little! How often do u see neuro? Who changes meds if they don’t work? Do you get follow up appointments/scans every year?! Hoping I get that initial positivity back!!!
Trying to be as active as I can, stretching off my legs and trying to exercise as much as I can. Not working due to nature of my job!