I think this is more of a vent than a question…
Just a quick recap - hospital mid Nov, provisional dx from MRI via GP mid Dec, confirmed dx via neuro 4th Feb, and now I’m waiting for a letter inviting me to book an appoinment with the specialist who can get the ball rolling on DMD’s etc. It seems to be taking for ever. My neuro took a week to send the letter to the other neuro, so in the meantime I contacted the MS Nurse, who was great, but now its nearly 7 weeks since that letter was sent, and still no ‘we’ve recieved a referal, please ring blah to book an appointment’. I rung the hospital, and they said they’d recieved it, and these things take time, and my MS Nurse is chasing too.
I know I’m not urgent, and there are people far more in need of treatment, but I feel a little bit lost. I’ve worked so hard to be positive, and get myself back on my feet after a tough few months, I’ve thrown myself back into life (but with a bit more care than previously) and I’ve been pretty happy (with a bit of help), but I can feel that slipping away as the wait goes on. I’ve just come home from a few days working away, and was almost in tears when I saw all I had was junk mail on the door mat. When I booked my initial appointment there was a 9 week wait, if that happens again, then it could be mid/end of May before I see him.
Is it me or does this seem a bit extreme? Am I just being unfairly impatient?