Very briefly, I had a CIS last June, positive lp, lesions showing on MRI. Diagnosed with probable MS. Was told to wait for either a relapse or new MRI , then I would be confirmed with MS. Relapse last November, got steroids. Had scan with dye beginning of March this year. New lesions, some of which were enhanced, so I take it, still active. I called for results and expected to be booked in, told the new diagnosis and given chance to talk about treatment options. But have to wait for my already-booked neuro appointment at the end of August.
Is this normal to wait sooooo long to confirm diagnosis? Will it definitely be MS or could it stay at probable?? I just feel like I am still in limbo and I think 5 months is an incredibly long time to wait for a neuro just to say, yup, it’s MS. It’s not that I want to have definite MS, but I want to put it behind me and move on (as best I can, lol).
Any advice would be most welcome, thank you!