I’ve had RRMS for about 9yr now, but this is the first relapse I’ve had that’s still going on 5months later, with new related symptoms starting/going daily. I’m so fed up and not sure what to do. Any advice?!!
Have you not contacted an MS nurse or GP re getting a dose of Steroids?
Are you on any DMDs?
I had my first relapse in August just as I was going into hospital to have an operation for Breast Cancer. Steroids were given to me and they were the only thing that got me back on my feet literally. Getting stronger everyday and have just finished 1 month of radiotherapy. Please see about steroids as they may be the best for you. I have never been on a dmd and the nurse said that I may not be offered one now due to the cancer treatment. I really hope things settle for you. Mary xxx
yes mary and poppy are right.
contact your ms nurse or neuro.
see your gp and tell him bad it is for you.
he/she should chase up the neuro/ms nurse.
you should really be on a DMD so ask about it.
take care, get lots of rest and pamper yourself
carole x
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Thanks very much. I did have a course of steroids about 2 weeks into the relapse, but has had no real impact - only a phone follow up since and am desperate for a face-to-face follow-up. Neuro has been disinclined to give me any DMDs previously because any relapses haven’t been severe enough… The next appointment I can get with him is 30 November but just feels like a very long time away, unfortunately. I’m seeking my GP again on Tuesday to see if she can offer any more support in managing my balance issues/vertigo before end November. Thanks for all your advice. I just feel very let down, not being able to have a proper medical discussion!!