Thankyou everyone for your interesting replies.
I have a few comments on certain replies;
Tina, just one comment on your reply;
you said care given
by someone who doesnt give a damn``…whilst there will be some carers who are like that, I know a lot more who do care, deeply, about their clients. I`ve not taken your comment to heart, but just wanted to give my opinion hun.
Shazzie, as a dedicated NHS worker, you saw the cuts first hand and it cut you deeply to see this happening.
Yvette, your reply is well received, but may I tell you what happened when I asked for an increase in care hours?
A social worker came and I told her why I would like more care. She said she couldnt just put in my request without doing a full new assessment. She told me what the previous social worker had written about me…it was badly wrong and i was upset about what he`d written
eg.he said I only showered once a week…hell fire, if that was the case, I`d be stinking and lousy!
He also said I needed help 3 times a week with my post, as I found it difficult to deal with…good heavens! I never even mentioned my post…I can deal with it and if i couldnt my fully compus mentos hubby would do it.
Then the social worker said if I applied for extra help, I may get a reduction in what I already had. She left me feeling as if I would never dare ask for more help ever again!
This is a worrying situation, as my condition is still progressing and sometimes hubby is in so much pain from his RA, that we literally muddle along and get quite upset with each other.
I use Direct Payments to fund my care and value every single penny/minute of it. I have a daily morning carer, who is self employed. She gives me 1.25hr. a day. That leaves another 22.75 hours in a day for hubby to look after me. My toilet trips regularly last around 45 - 60 minutes. I also get 8 hours a week and a sleepover once a week, from 2 other carers. this gives my hubby a break from me.
Yvette, I know you and other social workers work damned hard to ensure us vulnerable folk are taken care off. The cuts will continue, whilst you do your best.
i know we are fortunate to get what we already get and I know there are people who struggle more than we do and get less help.
Just my own perception and I hope no-one is offended by my words.