Having only had ms symptoms since last may the weakness is in both arms and legs. Combined with my muscles aching all the time when using them. Don’t wan to use them really. It has been getting worse. I think on top of the relapses unless it is just relapse after relapse etc. I wouldn’t mind if it was just my legs obviously would prefer nothing but you adapt but come the end of a day everything aches. Last weekend I had a totally lazy stayed in dressing gown and watched tv it was amazing. My ankles come evening are so so sore, But I’m finding using my phone, laptop writing all makes my arm muscles really sore. I’m just really worried for the future and my kids.
I think u need to see your neuro again, is there a relapse clinic. You seem to have a lot going on and your not getting any space to recover. Chase up your mri, I got mine on disk straight after mri so I could see for myself any difference or aak gp to chase. I think you have to chase and unfortunately shout abit to get things moving and this isn’t necessarily in our nature xxx
Hi Zoe Thanks I don’t really like to shout but I’m thinking I might. I have the doc tomorrow she’s really good. She might phone my ms nurse as she did the last time there was a relapse. And it’s amazing how quick things move when they phone. I suppose I’m concerned in that I recover from relapses then things go worse again. It’s like the steroids help get better then stuffs going down.
Morning Em, have you looked into LDN. Made a big difference when I took it and anything is worth a try when you are so down. And remember the oxygen. Great boost. G. Xx
Hi Em,
If it’s any reassurance, I’ve noticed upper body weakness at least since diagnosis, 3.5 years ago. But it hasn’t got dramatically worse over that time. When the disease first began - which I’m convinced was years before diagnosis - it was almost exclusively a lower body thing. I didn’t notice anything wrong above the waist.
But over time, everything is weak. Not so weak I can’t manage - my neuro still thought I was doing really well at the latest visit - so much so that he didn’t want to interfere with anything by persuading me to try DMDs,
So for me, the weakness and aches and pains have been just that. In 3.5 years, they haven’t progressed to a disabling degree. They’re annoying, and sometimes depressing, of course - it’s no fun feeling like you’ve got flu’ when you haven’t. But for me, they’re just something I’ve grown to accept as part of it - they haven’t been an omen of anything worse. Not yet, anyway, and 3.5 years is quite a long time.
Tina
x
Hi tina That’s reassuring though I know everyone’s different. I don’t get the whole thing. I can open really strong/tight jars but if I use my arm for any time they just burn Hi Gary How’s it going? I promise I’m going to try oxygen but you’ll have to supply coffee lol 
Em x
Absolutely, might even spring for lunch if you behave yourself. G. X
What’s the chances of that happening then lol
I’m not as crazy as I look, I knew my money was safe. Seriously will buy you a nice lunch if you take the hyperbaric plunge. G. Xx