Hello was wondering if someone could advise me as I am a bit worried and confused. I have had ms for now nearly 2 or 3 years and been taking injections for RRMS which is what I have but within these past few days I have been feeling some tingling sensation on my face whether it’s coz of tiredness or stress or the fact I have changed over my injection days as I used to do them Monday, Wednesday, Friday but Becoz of a busy schedule I’ve now changed them over by the advice of my nurse to Tuesday, Thursday and sat could anyone advice me these tingling I am feeling what could be wrong as I haven’t had this for a while
Hi Angie, I had this when I first had ms, before I was diagnosed, back in 1999. It went away, and then when I had my next relapse came back again. It went again a few weeks later, but next relapse came back and has never really gone now. It is there all the time, but I have got used to it, so does not bother me too much. It’s always worse when I’m tired. It’s a nerve in the face that has been attacked by the ms. Apparently my first consultant told me that’s it’s quite common. It feels like you have had an injection at the dentist to numb a tooth. I know it’s annoying, as when it first happened to me, I got fed up with it, but now all 24 years later, I just accept it as part of ms. Hopefully yours will improve in time, as everyone is different, so yours may go and the nerve heal again. I had steroids to help at the time, but too late now for me, as the ms has progressed to secondary progression stage. Take care.
Hello cats,
Thank you for your response. I haven’t had this tingling for a while since I started taking the copaxone but it’s been a week now I have felt this tingling on my face Becoz that’s where I had the 1st attack b4 I got diagnosed that I lost sensation on my left side of my face but now the tingling is unbearable and making me feel so moody and so low and so tired also. I have spoken to my nurse bout it and she said it’s a flare up but I believe it’s a relapse and has told me to do a urine sample jus to check for any underlying infections dat the tingling could have started, I will be doing one and sending it off jus to check and see. But thank you so much for msging me I jus feel so alone and have no one to talk to it’s hard to talk to family as they don’t understand wat I am feeling or goin thru even tho I have had ms for now 3 years and taking the meds also. Hope your doing ok and you take care also x
Hi Angie,
Yes, I’m the same left side of face, it does make you feel moody and low, it effects my left eye as well, which is a worry, as don’t have much sight in the right eye. Yes, you could have a urine infection, I always drink lots of water during the day, although that means going to to loo all the time, but better that than an infection. I know what you are going through, you can talk to me anytime you are feeling low, perhaps on a private message instead. Take extra care.
Hello cats,
Luckily I don’t have any issues with my sight but feeling low and slow in my walking but it’s stressful when I feel like dis coz my whole body aches. Yh I will be doing one and send it off and let’s see what they say. I’m terrible drinking water I’m more of a water and juice person but if it’s gotta be done I gotta jus gotta do it.
Thanks it’s nice to speak to someone that knws what I am goin thru I mean I have my family’s support but they jus don’t understand how I feel. We can private message on here u can message me any time on here x
Hi Angie,
Tried to do a private message, so don’t know whether you got my message or not. So just a quick response this time. Yes, juice in water would be okay, just keep drinking to save getting any infection. Glad you have your family’s support. I am lucky have a husband, who looks after me very well. Take care of yourself.