hi,
apologies in advance if this convoluted. I was diagnosed with MS in 2011. I went from relapsing remitting MS to primary progressive within a few years simply because we couldn’t actually track any remission or relapse, DMD’s weren’t any help and I just gradually get worse. I am soon to be 48 and am still working full-time. I am also a full-time wheelchair user outside of the house and struggle along with a wheeled walker inside the house (mainly because we not fully adapted)
so that’s the background dealt with.
Until recently I was quite happy to carry on working, but now things have changed I’m tired, and ill, and feel half the person I should be, you know what the score is.
The wheelchair I am using is now 6 years old. I have e motion wheels which allows me some independence in travel and general movement. It also allows me to continue working. I want these again but they are so expensive.
I need a new wheelchair and e motion wheels. I know that the access to work fund will help me to achieve this. However, the rules have changed and I feel too tired to be at the centre of all of this organisation. Is there anyone I can talk to, to help me get through the tangled mess that this is?
In the advice gratefully received.