I’ve not been doing too well lately. I can weight bear to transfer, but it’s getting increasingly difficult to get to my feet to do so. I pay for a specialist neuro physiotherapist to try to hang on to some mobility. These lockdowns have had a massive impact on my mobility, being stuck at home, I’ve not moved around as much as I used to. But I’m not complaining, it had to be done.
In 15 years I’ve been supplied with a bed handle, crutches, perching stool, foot up brace for dropped foot.
I’ve had four wheelchairs, I had an NHS voucher for £280 towards the cost of the second one, which I’ve replaced at my own expense twice since then. A community OT assessed me for a Musmate for dropped foot a few years ago, as it happens it wasn’t suitable, but she said as I pay for physio (not as an alternative to NHS but because the NHS doesn’t provide it) that makes me a private patient, so I’d have to pay for it myself!
This disability malarkey is expensive. It’s cost thousands to adapt our bungalow with ramps, wet room etc. Two years ago I bought a small powered chair to get around indoors, and a couple of weeks ago I bought a bigger one to try to recover some independence by going out alone. I’ve also just bought a freeway riser, which when I’m struggling my husband can get me up from a seated position single handed.
The time is coming when I’ll need to be hoisted by two carers. Will I also have to buy the hoist?
I appreciate how lucky I am to be able to afford all these things, I worked full time for over thirty years and paid into a very good pension scheme, and I’m in receipt of PIP. At the moment I only have carers a couple of times a week to give my long suffering husband a break which I have to pay for in full. No doubt in time I’ll need more.
Thanks for reading. I just felt the need to talk!