Don’t need to PM. Sure others have read or experience similar. Not like anyone knows me in person or where I live 
Diagnosed with RRMS in 2014 a week after my birthday so nice present there. RR so can’t comment on progressive side of things but I’ve got no compaints and only met a few people with a progressive version and that was in the physio department and didn’t hear anything bad.
Diagnosis was nice and quick. Well nice considering MS the outcome. I happened to have a major relapse a week before my referal to a Neurologist. Went to A&E for Double vision and mentioned everything else and that I was due to see a Neurologist a week later. From then things went quickly…compared to some peopes I’ve read anyway.
Since I’ve been diagnosed I’ve been through various treatments. Lower tier up to top tier. Lower tiered stuff either didn’t work at all or gave me liver function test results like I was downing a litre of Vodka daily for more than a decade. Even when I skipped 4 out of the 6 Rebiff shots I should have taken over the 2 weeks 
Not as agressive as Progressive but I was relapsing quite a lot, highly active, and ended up on crutches amongst other stuff. Went on Tysabri, which I loved even with the tiredness I got a week before next infusion. Was high on JCV when I started. I believe >1.5 was considered high so Tysabri should only be used for 2 years. I jumped to 4.58. 4.58 was apperently highest seen at the hospital so had to come of Tysabri. Tried a pill, can’t remember name, but relapsed multiple times in a few months. Then went onto Lemtrada.
First infusions were fine and no relapses. 2nd infusions a year later which should have been it. I started relapsing 2 years later and got on a 3rd course shortly after. Started relapsing 18months or so later. Kind of struggling for DMT that would work and not high risk. Still JCV 3.36 so Neurologist not comfortable me going back on that. Waiting for Stem cell treatment which could be a year or more based at a London hospital and still no idea if I’ll be accepted. Did read up last year and I’m kinda close to the cut off criteria.
Contacting the nurses via answer phone wasn’t my prefered option but it worked. So glad they now have an email so I don’t have to talk and can take my time to edit what I’m saying. I can mix things up or insert random words mid sentence and can’t edit in my head when talking. Always quick to believe me saying I’m relapsing, don’t have a UTI (started checking myself) and had my GP practice confirm I don’t have one. Even if the practice only confirmed it to me. Depending on Relapse symptoms they’d then either book me in for Steroid infusions to speed up recovery, provided I could make it to the hospital or they push through a request for Oral Steroids to my GP. Been Oral Steriods since Covid.
Referrals to Physio took a week for my first appointment, I think.
Referrals for Urology took close to a month before my appointment. Not the MS departments fault for it taking a while to get an Appointment.
Increased some of my meds when certain things got worse. Increased Gabapentin from 900mg 3x a day upto 1200mg 3x a day. Really didn’t like it that so high so I reduced it back to 900 and we increased the Amitriptyline instead. That helped with the symptom Gabapentin was being increased for and also helped with the low level burning in my feet and legs. Kinda got used to some burning. Was using it as an early warning systom to know if I was doing to much. Little burn in the evenings = ok. burning by noon = done too much it’s gonna be bad tonight. Now I get it late evening when I’ve done too much. Said I could have it a little higher but are fine with me leaving it as is.
Not enttirely sure if thats what you wanted. Got a lttle carried away here. Memory not so good nowadays. Tried reading this a few times to cut trim it but end up forgetting what I read/wrote at the start. I know there isn’t as many DMTs for progressive MS and there are considrably less diagnosis of the progessive types. So they are not as experienced dealing with that variant and are also limited in treatment options.