will it help?

Everyday living
1

Hi has any one any info on aubagio?

2

sorry, no info but here’s a BUMP!

3

Hi, on the MS Trust website there a bit of info.

4

not many answers back hope that is not a bad sign. Cheers

5

Hi Marion

I suspect that not many people are taking Aubagio because it’s just not as effective as even the old injectables for most people and it has a long list of potential side effects. And if you’re going to take a daily tablet type of DMD then Tecfidera or Gilenya are more effective.

This could be the reason you’ve not had a lot of replies.

Are you considering going on it? Why Aubagio and not Tecfidera? Which is another first line drug but with the potential to reduce relapses of about 50% rather than Aubagios 30%.

Sue

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6

There are previus posts : https://community.mssociety.org.uk/forums/everyday-living?title=aubagio

7

I can’t offer any personal experience but just had a look there are several Facebook pages/groups that might be of use.

8

Hi, thanks for the info. This is what has been prescribed for me? Maz

9

Thanks for the info I will do more research cheers x

10

I’m still mystified by your neurologist putting you on it. Maybe that’s the only one he and/or his staff have trained on? It should still provide some protection from relapses, but if you do continue to relapse whilst on it, then you should be asking for a different DMD. (Preferably one which has better stats!)

Btw, is your neurologist an MS specialist? If not, you could try asking for a referral to a neuro who is. Perhaps ask your MS nurse first (assuming you have one), or a general neurology nurse. It’s quite difficult to ask the neurologist concerned if they are a specialist, so if you don’t have anyone to ask, try googling his or her name. Or maybe look on your hospitals website. You should be able to find a basic bio.

Sue

11

I have an MS nurse & my neurologist has said he is a MS specialist, so far things seem ok still th odd balance prob & headache. I have bowel & waterwork issues but they know this & I have an appointment 21st sept (first 1 available.) As I have had 6 years undiagnosed I am unsure what is a relapse as I have had many problems that I just put up with. I have a MS apointment 23rd Aug to see how I am getting on with my drugs. so I will discus my symptoms & see if they are relapses or not.

Thanks Maz

12

Hi Maz

I know what it’s like to be undiagnosed for a good while, just getting on with life and living with things that in retrospect you can identify as probable relapses.

Having a look at the publications on the MS Trust website is a good place to start looking for information about all sorts of issues, like what is a relapse and all the different types of DMD and other symptoms.

It’s a good idea to keep a diary so you can identify problems clearly.

If you’re finding that Aubagio is keeping you relapse free and you don’t have side effects from it, then stick with it, but if you are relapsing on it, then ask to change to a more effective DMD at your appointment.

The more information you have, the more you will get out of your appointments.

Sue

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